Skip to content
christiezink's profile image - click for profile

Christie Zink's Fundraiser:

2015 Shamrock Shuffle

Christie's Photo
Christie's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2015 Shamrock Shuffle 8K

EVENT DATE: Mar 29, 2015

Christie Zink

THE STORY:

I never thought I would ever be a runner...I never thought that my heart would lead me in this direction...I am so incredibly blessed that it has...

I would like you to meet my sweet little friend Elisa.  Elisa was born with a rare skin condition called Epidermolysis Bullosa (EB) Elisa's EB is severe and she has spent many days in a pain that most of us could never imagine.  She spent her days wrapped head to toe in bandages to protect her from bumps that could potentially cause damage to her skin and to prevent infection that could be fatal.  

Elisa faced many difficult challenges and obstacles and depite this, she fought, and she continues to fight with everything she has.  She is a survior and each day she inspires us with her tenancity and courage...and that sweet little personality too!

This last year, Elisa underwent a potentially life saving bone marrow transplant at the University of Minnesota, and her life has changed dramatically, although she is not cured.  She continues to fight each day determined to beat the odds and not allow EB to win.  I believe she will...for there are amazing strides being made and there is tremendous hope in the research being done and she is a part the cure for EB.  

(Please see article http://www.startribune.com/lifestyle/health/218242151.html?page=1&c=y )

These AMAZING breakthroughs are made possible because of dedicated people who are determined to find a cure and the people who help fund this vital research.  You can be part of the cure by making a donation today and supporting Team EBRP at the Shamrock Shuffle!

Elisa...my sweet girl, this is all for you!  Thank you for continuing to inspire me everyday!!  I love you so very much and I promise you I will continue to fight for you and others with EB!

The EB Research Partnership (“EBRP”) is the largest nonprofit dedicated to funding research aimed at treating and curing Epidermolysis Bullosa (“EB”), a devastating and life-threatening genetic skin disorder that affects children from birth.

Individuals with EB lack a critical protein that binds their layers of skin together.  Without this protein, even the slightest touch or friction can cause blisters and wounds all over the body—inside and out.

 

 

 

DONATE

To This Fundraiser

$555

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Cathy Horton

    $50

  • Danny and Karan Hadley

    $150

  • Melissa Hillyer

    $50

  • Linda Schmiesing

    $50

  • Gabriella

    $100

  • Jamie

     

  • The Provost Family

    $50

  • Art, Timoree & Kids

    $40

  • Frank & Christine DeMars

    $25

  •  
  •  
  •  
 

111% Raised of $500 Goal

The Team: $28,606 TOTAL RAISED SO FAR

Fundraiser Title

Michael Kauf

Amount Raised

$12,191

Fundraiser Title

Brooke Michael Kauf

Amount Raised

$9,594

Fundraiser Title

Dana Davis

Amount Raised

$1,470

Fundraiser Title

EB Research Partnership

Amount Raised

$905

Fundraiser Title

Christie Zink

Amount Raised

$555

 

111% Raised of $500 Goal

Fundraiser Title

TIM Komenda

Amount Raised

$500

Fundraiser Title

Kate Segal

Amount Raised

$469

Fundraiser Title

Rachael Wrobel

Amount Raised

$425

 

213% Raised of $200 Goal

Donor Comments

Frank & Christine  DeMars

Frank & Christine DeMars

DONATION: $25

2 years ago

Art, Timoree & Kids

Art, Timoree & Kids

DONATION: $40

Happy Birthday! Enjoy the trip and good luck with the run. 3 years ago

The Provost Family

The Provost Family

DONATION: $50

In tribute to our Sweet Caroline and ALL those suffering from EB and those who love them. 3 years ago

Jamie

Jamie

Happy 40th Christie!! 3 years ago

Gabriella

Gabriella

DONATION: $100

For my baby…GO CHRISTIE!!!! 3 years ago

Linda Schmiesing

Linda Schmiesing

DONATION: $50

3 years ago

Melissa Hillyer

Melissa Hillyer

DONATION: $50

3 years ago

Danny and Karan Hadley

Danny and Karan Hadley

DONATION: $150

Donation in honor of Reid Underwood 3 years ago

Cathy Horton

Cathy Horton

DONATION: $50

3 years ago