Skip to content
rachaelwrobel's profile image - click for profile

Rachael Wrobel's Fundraiser:

2015 Shamrock Shuffle

Rachael's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2015 Shamrock Shuffle 8K

EVENT DATE: Mar 29, 2015

Rachael Wrobel

THE STORY:

Hi my name is Rachael and I will be running this race for my 25th birthday, which is in March.  People think turning 25 years old is just another number or that they're a quarter of a century old, but for someone who wasn't supposed to make it to their first birthday because I have Epidermolysis Bullosa it's a pretty big deal.  I was diagnosed with recessive dystrophic EB at birth since I was missing the top layer of skin on both of my legs.  My mom was able to take me home after 6 weeks in the PICU fully bandaged head to toe.  It would take her 3 hours everyday to do a bath and bandage change.  

I'm happy to say that I have improved over time but everyday is still a challenge of battling chronic pain and being able to maintain a "normal" life.  Running is a major challenge for me because I risk cause blisters or skin tears on my feet, but I believe this risk is worth the reward.  I'm running in honor of all the adults and children struggling to survive with EB and I would appreciate any support and encouragement to make it to the finish line.  All donations are going to EB Research Partnership who is working really hard to find better treatments and hopefully one day a cure for EB!

The EB Research Partnership (“EBRP”) is the largest nonprofit dedicated to funding research aimed at treating and curing Epidermolysis Bullosa (“EB”), a devastating and life-threatening genetic skin disorder that affects children from birth.

DONATE

To This Fundraiser

$425

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Cristian

    $25

  • Meatball

    $25

  • PezMan

    $25

  • Mihaela

    $25

  • Sheryl

    $50

  • Amanda Palazzolo

    $25

  • Jim & Kathy Schipma

    $25

  • Kenyon Family

    $25

  • The Silver famil

    $50

  • Kathie

    $20

  • Amy

    $25

  • Ramon & Sandra Lagerstrom

    $50

  • Morris and Rita Levine

    $15

  • Lionel and Marjory Beaudin

    $15

  • Joseph and Elizabeth Pilotto

    $25

  •  
  •  
  •  
 

213% Raised of $200 Goal

The Team: $28,606 TOTAL RAISED SO FAR

Fundraiser Title

Michael Kauf

Amount Raised

$12,191

Fundraiser Title

Brooke Mike Kauf

Amount Raised

$9,594

Fundraiser Title

Dana Davis

Amount Raised

$1,470

Fundraiser Title

EB Research Partnership

Amount Raised

$905

Fundraiser Title

Christie Zink

Amount Raised

$555

 

111% Raised of $500 Goal

Fundraiser Title

TIM Komenda

Amount Raised

$500

Fundraiser Title

Kate Segal

Amount Raised

$469

Fundraiser Title

Rachael Wrobel

Amount Raised

$425

 

213% Raised of $200 Goal

Donor Comments

Ramon & Sandra Lagerstrom

Ramon & Sandra Lagerstrom

DONATION: $50

3 years ago

Morris and Rita Levine

Morris and Rita Levine

DONATION: $15

3 years ago

Lionel and Marjory Beaudin

Lionel and Marjory Beaudin

DONATION: $15

3 years ago

Joseph and Elizabeth Pilotto

Joseph and Elizabeth Pilotto

DONATION: $25

3 years ago

Amy

Amy

DONATION: $25

Good luck Rachael. 3 years ago

Kathie

Kathie

DONATION: $20

3 years ago

The Silver famil

The Silver famil

DONATION: $50

You are truly an inspiration. We hope that our son Jackson has the same fighting spirit that you do! 3 years ago

Kenyon Family

Kenyon Family

DONATION: $25

3 years ago

Jim & Kathy Schipma

Jim & Kathy Schipma

DONATION: $25

Our Grandson Blake Kenyon 3 years ago

Amanda Palazzolo

Amanda Palazzolo

DONATION: $25

3 years ago