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Sookie L's Fundraiser:

2015 Shamrock Shuffle

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BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2015 Shamrock Shuffle 8K

EVENT DATE: Mar 29, 2015

Sookie L

THE STORY:

EB Research Partnership wrote -

The EB Research Partnership (“EBRP”) is the largest nonprofit dedicated to funding research aimed at treating and curing Epidermolysis Bullosa (“EB”), a devastating and life-threatening genetic skin disorder that affects children from birth.

Individuals with EB lack a critical protein that binds their layers of skin together.  Without this protein, even the slightest touch or friction can cause blisters and wounds all over the body—inside and out.

Join TEAM EBRP at the Bank of America Shamrock Shuffle, March 29, 2015 and help us in the race to cure EB.  You can do this simply by registering as a runner at www.shamrockshuffle.com. Remember to choose EB Research Partnership as your affiliated charity and pay the race registration fee.  Once you have registered, you can set up your own fundraising page here by clicking “Join the Team” Under “The Team” tab.  All team members must agree to a minimum fundraising goal of $150 benefiting EBRP.  Along with your required minimum fundraising goal of $150 EBRP will provide you with an official TEAM EBRP race shirt.

By joining TEAM EBRP, know that you are making a difference in the lives of those affected by this disorder.  Together, we can help bring life saving treatments to those who suffer daily from EB.  We greatly appreciate your support.  For more on EB and the strides we are taking for a cure please visit www.ebresearch.org

If you have any questions about the Shamrock Shuffle please contact Abbie Levine at abbie@ebresearch.org

DISCLAIMER OF LIABILITY AND INDEMNIFICATION * * * IMPORTANT * * * PLEASE REVIEW CLOSELY

I understand that training for and participating in the Shamrock Shuffle is a potentially hazardous activity and involves risk and dangers of serious bodily injury, some of which may not be foreseeable.  I agree not to enter and participate in Shamrock Shuffle unless I am medically able and properly trained.  I agree to abide by any decision of an event official regarding my ability to safely start and complete the event.  I am voluntarily entering the Shamrock Shuffle, and I assume all foreseeable and unforeseeable risks associated with training for and participating in the Shamrock Shuffle, including, but not limited to: falls; contact with other participants, spectators, event personnel, or others; weather-related injuries, including those caused by heat, humidity, precipitation, lightning, and wind; traffic; course conditions; and acts of terror.  Having read this disclaimer and knowing these facts, and in consideration of your acceptance of this application, I, for myself and anyone entitled to act on my behalf, waive and release the EB Research Partnership, its employees, directors, officers and representatives, and successors (hereinafter collectively the “Releasees”), from present and future claims and liability of any kind, known or unknown, arising out of my training for and participation in the Shamrock Shuffle or related activities, even though such claim or liability may arise out of negligence or fault on the part of the EB Research Partnership and the Releasees or any other party.  If, despite this release, I, or anyone on my behalf, makes a claim against the EB Research Partnership and the Releasees related to the Shamrock Shuffle, I agree to indemnify and hold harmless the EB Research Partnership and the Releasees from any litigation expenses, attorneys’ fees, loss, liability, damage, or cost it may incur due to the claim, whether the claim is based on the negligence of the EB Research Partnership, the Releasees or otherwise.

DONATE

To This Fundraiser

$200

MONEY RAISED
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  • Kenyon Family

    $20

  • Priti & Jerry

    $20

  • Rich & Kenni Eberlin

    $20

  • Sookie's fan

    $20

  • Brandon

    $25

  • Becky Beck-Ryan

    $20

  • Catherine D. Battista, Esq.

    $75

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The Team: $28,606 TOTAL RAISED SO FAR

Fundraiser Title

Michael Kauf

Amount Raised

$12,191

Fundraiser Title

Brooke Michael Kauf

Amount Raised

$9,594

Fundraiser Title

Dana Davis

Amount Raised

$1,470

Fundraiser Title

EB Research Partnership

Amount Raised

$905

Fundraiser Title

Christie Zink

Amount Raised

$555

 

111% Raised of $500 Goal

Fundraiser Title

TIM Komenda

Amount Raised

$500

Fundraiser Title

Kate Segal

Amount Raised

$469

Fundraiser Title

Rachael Wrobel

Amount Raised

$425

 

213% Raised of $200 Goal

Donor Comments

Catherine D. Battista, Esq.

Catherine D. Battista, Esq.

DONATION: $75

3 years ago

Becky Beck-Ryan

Becky Beck-Ryan

DONATION: $20

3 years ago

Brandon

Brandon

DONATION: $25

3 years ago

Sookie's fan

Sookie's fan

DONATION: $20

3 years ago

Rich & Kenni Eberlin

Rich & Kenni Eberlin

DONATION: $20

3 years ago

Priti & Jerry

Priti & Jerry

DONATION: $20

Go, Sookie, Go! So proud of you. 3 years ago

Kenyon Family

Kenyon Family

DONATION: $20

Thank you Sookie for your continued help to fight for a CURE! 3 years ago