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Joanne Winkler's Fundraiser:

2016 RUN FOR EB SHAMROCK SHUFFLE

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BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 Shamrock Shuffle 8K

EVENT DATE: Apr 03, 2016

Joanne Winkler

THE STORY:

EB Research Partnership wrote -

The EB Research Partnership (“EBRP”) is the largest nonprofit dedicated to funding research aimed at treating and curing Epidermolysis Bullosa (“EB”), a devastating and life-threatening genetic skin disorder that affects children from birth.

Individuals with EB lack a critical protein that binds their layers of skin together.  Without this protein, even the slightest touch or friction can cause blisters and wounds all over the body—inside and out.

By joining TEAM EBRP, know that you are making a difference in the lives of those affected by this disorder.  Together, we can help bring life saving treatments to those who suffer daily from EB.  We greatly appreciate your support.  For more on EB and the strides we are taking for a cure please visit www.ebresearch.org

If you have any questions about the Shamrock Shuffle please contact Abbie Levine at abbie@ebresearch.org

Many people on our team are running in honor of Teodora (Teya) Radovic who was diagnosed at birth with Recessive Dystrophic EB. At just 4 months old, Teya had an experimental bone marrow transplant which helped her condition.  However, it was not a cure.  Now almost two years old, Teya is a loving, smart, and adventurous little girl. Despite battling EB every day, she is full of life and doesn't let this condition get in her way. We are participating this year in honor of this amazing little fighter and others like her! 

 

DONATE

To This Fundraiser

$325

MONEY RAISED
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  • ESCO Insurance Agency

    $25

  • Jeannie and Brian

    $50

  • Natalie and Brent

    $25

  • JOANNE & DONALD FARBER

    $20

  • TRUDI & RAY WINKLER

    $20

  • BARBARA & JERRY HEINZEROTH

    $15

  • Lisa Vickers

    $20

  • Laurie Schumacher

    $25

  • Meggan Mroz

    $25

  • John & Jan Comiskey

    $25

  • Heather and Adrienne

    $50

  • The Siefert family

    $25

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Fundraise for this Campaign

The Team: $5,150 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Milana Radovic

Amount Raised

$1,755

 

176% Raised of $1,000 Goal

Fundraiser Title

Michael Pokrajac

Amount Raised

$1,600

 

80% Raised of $2,000 Goal

Fundraiser Title

Joanne Winkler

Amount Raised

$325

Fundraiser Title

Mirela Pokrajac

Amount Raised

$250

 

250% Raised of $100 Goal

Fundraiser Title

Sanja Matijevic

Amount Raised

$195

 

195% Raised of $100 Goal

Fundraiser Title

Ana Tasevska

Amount Raised

$150

Fundraiser Title

Mira Culic

Amount Raised

$125

 

125% Raised of $100 Goal

Fundraiser Title

EB Research Partnership

Amount Raised

$100

Donor Comments

The Siefert family

The Siefert family

DONATION: $25

3 years ago

Heather and Adrienne

Heather and Adrienne

DONATION: $50

3 years ago

John & Jan Comiskey

John & Jan Comiskey

DONATION: $25

3 years ago

Meggan Mroz

Meggan Mroz

DONATION: $25

Good Luck!!ð 3 years ago

Laurie Schumacher

Laurie Schumacher

DONATION: $25

3 years ago

Lisa Vickers

Lisa Vickers

DONATION: $20

Good Luck Joanne Winkler - Run strong & fast! 3 years ago

JOANNE & DONALD FARBER

JOANNE & DONALD FARBER

DONATION: $20

3 years ago

TRUDI & RAY WINKLER

TRUDI & RAY WINKLER

DONATION: $20

3 years ago

BARBARA & JERRY HEINZEROTH

BARBARA & JERRY HEINZEROTH

DONATION: $15

3 years ago

Natalie and Brent

Natalie and Brent

DONATION: $25

3 years ago