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Team Twible's Fundraiser:

2016 New York Marathon

Team's Photo

BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 TCS NEW YORK CITY MARATHON

EVENT DATE: Nov 06, 2016

Team Twible

THE STORY:

Dear Family and Friends,

On Sunday, November 6, 2016, I will be running the NYC marathon in honor of my son Robert John who suffers from Epidermolysis Bullosa.  Daily he goes through more pain than most people will feel in a lifetime.  Please join me and my amazing team in finding a cure for Robbie and all of those living with this devastating disease.  Today we are closer to a cure than ever before.  Your donation will help with research that can and will improve the quality of life of all of those living with EB.  Thank you for your support.  God Bless!!!

Much love,

Kathy 

 

EB Research Partnership wrote -

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/1009

$6,245

MONEY RAISED
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  • Harlem Globetrotters

    $500

  • Profeta family

    $300

  • Kaitlyn Garbien & Friends

    $100

  • Katie Sussman

    $50

  • Welsh Family

    $50

  • Ryan and Charlotte Kenny

    $200

  • Anonymous

    $25

  • John and Deise Kenny

    $75

  • Dana Grassotti

    $100

  • Henry and Molly Schnell

    $50

  • Catalano family

    $100

  • Masterson's

     

  • Daniel koubel

    $100

  • Katelin, Paul, & Linda Kelly

    $100

  • Simon M

    $50

  • Jeanne and Brian DeMasters

    $125

  • Matt/Kelly Lipack

    $100

  • The Walker Family

    $100

  • Andrea Gerstenblatt

    $100

  • Tom Hughes

    $100

  • The Visconti family

     

  • LG

    $100

  • Jerry and Rochelle

    $25

  • Velez Family

    $50

  • Lisa & Paul Imperiale

    $25

  • The Maloney Family

     

  • Vinny & Joanna Festa

    $100

  • The Kilcarrs

    $25

  • Lindsay Carlucci

    $25

  • The Twomey Family

    $50

  • Brian & Jeanne Murphy

    $250

  • Keelin Reilly

    $100

  • Stephanie & Preston Chan

    $75

  • Sandra Kaufman

    $250

  • Mindy Hoffman

    $25

  • Schwartz Family

    $100

  • Imperatore Gang

     

  • Karen Stracquadanio

    $25

  • Tom and Sharon Murphy

    $75

  • The Kawochka Family

    $25

  • Sean & Tara Smith

    $100

  • Candice Nagle

     

  • Christine Ahl

    $50

  • Kerrie Murray

    $50

  • Anonymous

    $25

  • Hot Chocolate for a Cure

    $500

  • Patricia Russo

    $25

  • The Savarese Family

    $100

  • Brian and Abby

    $50

  • Shannon Basore

    $25

  • Maddy Constantino

    $100

  • Erin Wilder

    $100

  • Lewis Family

    $50

  • The Viola Family

    $100

  • Howard Kubel

    $50

  • Cocchi Family

    $50

  • Iris Kubel

    $25

  • Chris & Maura Murphy

    $100

  • Marni Shapiro

    $100

  • Elizabeth Palleschi

     

  • Amy Vogel

    $50

  • Bettyann Liotta

    $50

  • The Schwartz Family

    $25

  • The Vislocky Family

    $100

  • Nana

    $200

  • Erin Dunlap

    $50

  • Pamela Rupy

    $40

  • David Kanner

    $50

  • The Smith Family

    $100

  • Floridia Family

    $50

  • Eve Crespi

     

  • Orla Bowie

    $25

  • Geralyn Morgan

    $25

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The Team: $67,976 TOTAL RAISED SO FAR

Fundraiser Title

stephen evans

Amount Raised

$10,000

Fundraiser Title

Megan Simon

Amount Raised

$6,900

Fundraiser Title

Team Twible

Amount Raised

$6,245

Fundraiser Title

Chip Baird

Amount Raised

$6,222

 

249% Raised of$2,500 Goal

Fundraiser Title

Amos Brotter

Amount Raised

$5,825

Fundraiser Title

Tracy Wetherbee

Amount Raised

$4,887

 

98% Raised of$5,000 Goal

Fundraiser Title

Taylor Faust

Amount Raised

$4,157

Fundraiser Title

Nestor Gomez

Amount Raised

$3,763

Donor Comments

Geralyn Morgan

Geralyn Morgan

DONATION: $25

Praying for a cure!! 3 years ago

Orla Bowie

Orla Bowie

DONATION: $25

3 years ago

Eve Crespi

Eve Crespi

3 years ago

Floridia Family

Floridia Family

DONATION: $50

3 years ago

The Smith Family

The Smith Family

DONATION: $100

Your family is always in our thoughts and prayers. Praying for a cure! 3 years ago

Erin Dunlap

Erin Dunlap

DONATION: $50

3 years ago

Pamela Rupy

Pamela Rupy

DONATION: $40

3 years ago

David Kanner

David Kanner

DONATION: $50

3 years ago

Nana

Nana

DONATION: $200

3 years ago

The Vislocky Family

The Vislocky Family

DONATION: $100

3 years ago