Thank you for helping us hit our first goal!
September 11, 2016
BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
EVENT DATE: Nov 06, 2016
As many of you know, when our family relocated to Starkville, MS 3 years ago we met an amazing little boy. Gabe Valentine quickly became one of my son's new friends. "SuperGabe" was born with a rare genetic condition - Junctional Epidermolysis Bullosa (EB). This causes his skin to blister and results in open wounds.
Over the time we have known him, we've watched Gabe go in and out of the hospital, have great days, and awful days, and no matter what he seems to be smiling 98% of the time! Today Gabe was welcomed home by a parade at his elementary school. You see, he just returned from Minnesota where he underwent a bone marrow transplant. Gabe and his mom were away from home for over 4 months! He is doing remarkably well....but that is to be expected.....afterall he's SUPERGABE!
The EB Research Partnership works to treat and cure EB as quickly and efficiently as possible. They work to fulfill their mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.
They are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth....and this is MY why. I am running with this group to raise money and more awareness, for kids like Gabe, with the hope that they can one day find a cure.
Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer, GABE and every other person suffering from this horrific condition. Though the researchers have made significant progress, they need much greater resources in their pursuit of a cure.
Partner with us in our mission to further life-saving research.