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Mary Ellen Scott's Fundraiser:

2016 NY Half Marathon

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BENEFITING: EB Research Partnership

ORGANIZER: EB Research Partnership

EVENT: 2016 United Airlines NYC Half

EVENT DATE: Mar 20, 2016

Mary Ellen Scott

THE STORY:

Six years ago Craig and I lost our second son, Ryan to Epidermolysis Bullosa (better known as EB).  Ryan only had 80 days on this earth to warm hearts and change lives before he earned his butterfly wings. It's our mission to keep him memory alive and help fundraiser for a cure which is in sight. 

This year Craig and Mary Ellen will both be participating in the NYC Half Marathon with a group of parents also fighting the fight for our children who cannot. Please consider supporting us with a donation of any size!

THANK YOU,

Craig and M.E.

ABOUT EB RESEARCH PARTNERSHIP

We are working to treat and cure EB as quickly and efficiently as possible. We fulfill our mission by partnering with non-profit and for-profit entities and individual donors, as well as with the EB and research communities.

We are the largest nonprofit dedicated to funding research aimed at treating and ultimately curing EB, a group of devastating and life-threatening genetic skin disorders that affect children from birth.

Leading researchers say treatments and a cure for EB are within reach—for Shane, Ryan, Jackson, Michael, Jennifer and every other person suffering from this horrific condition. Though we have made significant progress, we need much greater resources in our pursuit of a cure.

Partner with us in our mission to further life-saving research.

http://ebresearch.org/

https://www.youtube.com/watch?v=qz0QeSCWif4

http://www.thedoctorstv.com/videolib/init/1009

$2,455

MONEY RAISED
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  • Christine Jenkinson

    $50

  • Jeff, Jennie and Gracie

    $50

  • The Krajewski Family

    $50

  • Doris Sugarman

     

  • Rachel, Liam and Eli

    $25

  • The Carmon Family

    $50

  • Sylvia Ho

     

  • A Fellow Runner

    $25

  • Jan Matthews

    $10

  • Terry and Ed Scott

    $100

  • Laurie, Mike, Max & Eli

    $50

  • Alex Rose

     

  • Bob Picard

     

  • Jeff Benjamin

    $50

  • Lee & Mary Beth Welch

    $50

  • The Gramhagens

    $250

  • Tracy Bodine

     

  • The Shockley Family

     

  • Scott and Debbie Livingston

    $50

  • Paul Savino

    $100

  • Patricia Ann Penney

    $50

  • Linda Cardillo

    $50

  • Bill & Jesy

    $100

  • Gilbert and Jody Braunig

    $50

  • Doug & Donna Rose

    $225

  • JOHN AND MONICA CYR

    $50

  • The Baushers

    $50

  • Chris & Mary Elizabeth

    $100

  • Rich Haydasz

    $25

  • Wells Lindsay

    $50

  • Employees of Aero Gear

    $135

  • The Baker Family

    $50

  • The Duncans

    $50

  • Jayden Desrochers

    $40

  • The Lavellis

    $50

  • Ed and Jaclyn Petrizzo

    $50

  • Steve Holhubner

    $20

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61% Raised of $4,000 Goal

The Team: $78,515 TOTAL RAISED SO FAR

Fundraiser Title

Brooke Mike Kauf

Amount Raised

$19,760

 

132% Raised of $15,000 Goal

Fundraiser Title

Team Kauf

Amount Raised

$8,090

Fundraiser Title

Richard Grossmann

Amount Raised

$5,477

 

91% Raised of $6,000 Goal

Fundraiser Title

Megan Simon

Amount Raised

$3,925

Fundraiser Title

Colby Mulvey

Amount Raised

$3,750

Fundraiser Title

Stephanie Treanor

Amount Raised

$3,100

Fundraiser Title

Erin Karnovsky Schonbraun

Amount Raised

$2,691

Fundraiser Title

Amanda Barclay

Amount Raised

$2,550

Donor Comments

Steve Holhubner

Steve Holhubner

DONATION: $20

3 years ago

Ed and Jaclyn Petrizzo

Ed and Jaclyn Petrizzo

DONATION: $50

3 years ago

The Lavellis

The Lavellis

DONATION: $50

3 years ago

Jayden Desrochers

Jayden Desrochers

DONATION: $40

Baby Ryan 3 years ago

The Duncans

The Duncans

DONATION: $50

For Ryan 3 years ago

The Baker Family

The Baker Family

DONATION: $50

XOXO Ryan XOXO 3 years ago

Employees of Aero Gear

Employees of Aero Gear

DONATION: $135

3 years ago

Wells Lindsay

Wells Lindsay

DONATION: $50

3 years ago

Rich Haydasz

Rich Haydasz

DONATION: $25

3 years ago

Chris & Mary Elizabeth

Chris & Mary Elizabeth

DONATION: $100

In Memory of Ryan. 3 years ago