UNITED SURVIVORS OF EPIDERMOLYSISBULLOSA...
BASED: Pleasant Grv, UT, United States
CHARITY WEBSITE: www,ebsurvivors.org
UNITED SURVIVORS OF EPIDERMO...
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Our four main goals are:
*To continue holding an annual week-long summer camp for adolescents and adults with EB aimed at education, growth, and self-esteem boosting through FUN activities and workshops.
*To continue giving scholarships for education, medical care, and job training to people with EB, allowing them to become more independent and self-reliant by accomplishing their personal goals.
*To establish a mentor program that will pair prominent members of the community, covering a variety of trades and specialties, with an EB Survivor who wants to improve or enhance their skills in a particular area.
*To build or purchase a property that will become an EB Survivor home that will serve as an independent living community for individuals or families with EB where they can receive support, proper medical care and nutrition, and learn to become more self-reliant.