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Edgar Ramirez

Edgar Ramirez
United States
CROWDRISING SINCE: Jul 04, 2017
Stuff About Me:

In December of 2016 we discovered my 4 year old son has many CCMs scattered throughout his brain. He underwent surgery in December to remove a golf ball size CCM from his cerebellum. As of right now, there is no cure, no treatmen other than surgery, just management of symptoms if they pop up. Living everyday knowing our little boy has these is difficult. Knowing you can't help him then go away is difficult. CCMs are hard to manage. There are many unknowns, unanswerable questions we deal with. Angioma Alliance is our hope for these answers. They lead the way in discovering a cure, better treatment options, and resources for those dealing with CCM's. Please consider helping us raise money towards a cure. ANGIOMA ALLIANCE wrote - REGISTRATION IS FREE! RECEIVE A T-SHIRT IF YOU DONATE/RAISE A MINIMUM OF $35! Join us as we raise funds and awareness for those affected by cerebral cavernous angioma (CCM)! This inaugural Angioma Alliance Walk & 5K honors Florence Joyner at Flo Jo Park in Mission Viejo. Flo Jo, still considered the world's fastest woman, passed away from complications related to CCM. Her daughter, Mary Ruth Joyner, a former contestant on America's Got Talent, will also join us and sing the National Anthem. SIGN UP TODAY AND CREATE YOUR FUNDRAISING WEBPAGE! GET INVOLVED! We are currently recruiting for committee members, sponsors and in-kind donations of food and beverages and auction and raffle items. Reach out to salband@angioma.org to find out more!

Edgar
Ramirez

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CR Impact Points

If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for Edgar this month. Come back next month and vote again if you still love Edgar. Thanks to your vote, Edgar earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.

30,950

Total Impact Points

Edgar Ramirez's Fundraisers

Angioma Alliance Walk Honoring Florence Joyner in Orange County, CA

Angioma Alliance Walk Honori…

Amount Raised:

$1,070

 

107% Raised of $1,000 Goal