I have gone from one doctor to another. Each specialist would diagnose me with a diagnosis, such as POTS, neuropathy, etc. It took me changing my primary physician, in order to get the diagnosis of MSA (Multiple System Atrophy). That day was a day of very mixed feelings. I was very happy to have a name to go with all that was happening with me, now I could research it. However, I was very sad and hurt to find out the prognosis. Why me, (everyone ask), how did this happen, what did I do to get this? Then to find out that this is so rare that I am only the second person in the state of Ohio that has called to find a local support group, the other person was a male from the Cincinnati area and I am just east of Cleveland. So this is not like AA, where there are support groups all over. Most people have never heard of MSA, or Shy-Drager. Although I am still in the "early" stages, this death sentence, is not one of comfort. I hurt each and everyday, sometimes from my head to my toes. There are days of great deep depression, and days of standing up tall and noticing the things that you have taken for granted, such as the different colors of nature, the different sounds around you, etc. Something like this makes you realize how precious life really is. This is why this fundraiser is so important to me. Not only do I want to be the person that may have something in my body to help delay or over come MSA, but I want to be able to help the MSA Coalition find a cure. No-one should have to live a life with a ticking time clock. I am a person who feels that it is very important to give back to your community, after all I assist others to put on the Downtown Willoughby Cruise-In. The Downtown Willoughby Cruise-In Committee, is a 501C3, non-profit organization. We give out multiple scholarships, as well as assist the local food bank, Toys for Tots, and much more. So making a difference in someone's life is really important to me. This is why I am asking for donations to help the research and cure of MSA Thank you.