HOPE IS awareness, education and research. Many with EDS NEVER receive a proper diagnosis or treatment within their lifetime. It usually takes an EDS patient 20+ years to get a diagnosis. EDS is not RARE...it's RARLY DIAGNOSED or UNDERSTOOD.
Please be that piece of "HOPE". Donations are 100% tax-deductible. Thank you very much!
The EDS community has always had to depend on the public, those affected and their family members for their generous support. It's been the kindness through their donations that have helped to support EDS Today's mission and to raise funds for vital research projects that could make a difference.
We do not have the attention of big pharmaceutical companies to help finance this research to find those answers and HOPEFULLY that CURE that is so desperately needed. We have to do this ourself, with the public and families support.
EDS is a genetic connective tissue disorder. It can be inherited or due to a spontaneous mutation that causes a defect in the synthesis of collagen (a protein in connective tissue). Collagen is found throughout the entire body, it's what gives the body its strong structure and acts like glue that holds it together. These mutations cause fragility throughout the whole body: skin, muscles, ligaments, blood vessels and visceral organs. The development of aneurysms, dissections and ruptures can occur at any time. There are six different types of EDS, which can range in severity from mild to life threatening. There is no cure; there are no effective treatments, only supportive, preventive care and monitoring.
EDS Today is a 501 (c) (3) tax-exempt nonprofit organization. They have always been staffed 100 percent by dedicated volunteers.
Pleae read the second and third photo that shows pictures of the Mosiac Art piece and more information about our "Thank You" drawing.
To learn more click on EDS Today above or visit: http://edstoday.org