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FND Hope, INC's Fundraiser:

Elizabeth's Quest to Change the World

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owner profile imageWOW!! Over 50% towards my goal!!
February 08, 2017

Thank you all for your very generous support!!   I am thrilled to be over 50% of my way to my goal of $5000!    Your support means so much  See more

BENEFITING: FND Hope, INC

THE STORY:

What if, from one day to the next, life as you knew it vanished and you weren't able to control your own body's movements?

I never even knew that could happen. But it happened to me.

If that happens, at least doctors will be able to help you get back to normal and resume your life, right?

That turns out not to be true.

Who knew that it isn't unusual for doctors not to know what is wrong with you, even when you are suddenly debilitated by a neurological condition in the prime of life - right when you thought might actually train for a half Ironman Triathlon (which meant running 1/2 marathon, after swimming 1.2 miles and biking 56 miles). I didn't know the medical system wouldn't know what to do with me, but I've learned a lot over the last 3 years, including that if you've got something out-of-the-ordinary, you pretty much left on your own.

 

What I know NOW is that I'm not alone in this struggle. It is estimated that 1/3 of all neurology patients fall into a mystery/catch-all bucket called "functional neurological disorder(s) (FND)". In 2010, there were 14 million visits to office-based neurologists in the US , meaning nearly 5 million Americans suffer from FND. That is more than Multiple Sclerosis and Parkinson's combined!

The majority of FND patients are disabled by their symptoms, yet few effective treatments exist. It is time for that to change!

FND Hope is a patient advocacy group that is leading the charge to change this. FND Hope has established a scientific registry to connect researchers and patients to advance research and find better treatment options; provides educational materials to physicians, patients, and care-givers; and supports patients through support groups. FND Hope's support has been critical for me to find others in situations like mine and to move towards more effective care.

Can I count on you to make a contribution to support this game-changing work?

If you know of anyone else who might be intersted in supporting this important cause, please feel free to send them this link! 

Should you prefer to contribute via check, you may send a check to FND Hope at PO BOX 783, Salmon, ID 83467, USA. 

If your employer will match a portion of your donations, please don't forget to notify them of the donation. 

DONATE

To This Fundraiser

$3,030

MONEY RAISED
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  • Anonymous

     

  • Anonymous

    $500

  • Traci Shortridge

     

  • Anonymous

    $100

  • Mike and Mary

    $500

  • Josh

    $500

  • David and Meg

    $500

  • Anonymous

     

  • Katie Murphy

    $50

  • Callista Medland

    $50

  • Anonymous

    $250

  • Katrina

    $100

  • Lorel

    $200

  • Ilana Jouppi

     

  • The Owen Family

    $100

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61% Raised of$5,000 Goal

Fundraise for this Campaign

The Team: $3,030 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

FND Hope, INC

Amount Raised

$2,930

 

59% Raised of$5,000 Goal

Fundraiser Title

Irma Boltman

Amount Raised

$100

Donor Comments

The Owen Family

The Owen Family

DONATION: $100

2 years ago

Ilana Jouppi

Ilana Jouppi

2 years ago

Lorel

Lorel

DONATION: $200

I am very sorry to see you afflicted by this. You always put such effort into living a healthy lifestyle. I am hopeful that things start to get better. 2 years ago

Katrina

Katrina

DONATION: $100

2 years ago

Anonymous

ANONYMOUS

DONATION: $250

2 years ago

Callista Medland

Callista Medland

DONATION: $50

Inspired by you, Elizabeth, and your strength and attitude on this journey! 2 years ago

Katie Murphy

Katie Murphy

DONATION: $50

Elizabeth, you are amazing! Sending my love! 2 years ago

Anonymous

ANONYMOUS

2 years ago

David and Meg

David and Meg

DONATION: $500

2 years ago

Josh

Josh

DONATION: $500

So that patients can hopefully get answers 2 years ago