You guys are SUPER!
September 14, 2016
BENEFITING: Solving Kids' Cancer
Help fund new research!
With a goal of $10,000, Ellen’s Friends and Family will partner with Solving Kids’ Cancer in funding an important clinical trial that will open in late 2016 using a potent new drug called lorlatinib for children with neuroblastoma.
This drug has shown remarkable results in adult lung cancer patients with a certain mutation called ALK that was also present in Ellen’s neuroblastoma, including complete responses in some patients.
This clinical trial will be open in 15 hospitals in the US and Canada, with plans to open a site in London to allow access for children in Europe. Investigators expect that this phase I/II clinical trial will result in rapid FDA approval for ALK+ neuroblastoma, making the drug widely available for children who are likely to benefit in the near future.
Ellen’s Friends and Family supports trials that make drugs that have shown promise in adult cancers available to children. We raised $24,688 toward a cutting-edge trial that matches characteristics of neuroblastoma to particular drugs (including ALK), and children are now enrolling at Children's Hospital of Philadelphia.
Please support this innovative trial. There are kids out there like Ellen, kids full of joy and promise, who need new treatment options and need them now.