The most difficult time of my life was when our daughter, Elizabeth, was admitted to Children's Hospital for a 3 1/2 week stay at 4 1/2 months of age; one of the weeks in the ICU where we faced moments of uncertainty, fear, and questioning, 'will we be able to leave with her still with us?' 2 weeks into her hospitalization, after every test, poke, probe, scan possible, we still had no clear diagnosis. Elli was barely eating at times, barely staying awake, almost lifeless, and I felt so helpless as a parent. The only thing I could do was hold onto her and pray-really hard. Doctors leaned towards Kawasaki Disease, but, because she was also presenting with other symptoms, and because it is so rare (9 in 100,000 cases), other possibilites were not ruled out. Then day # 19 of her hospitalization it was revealed-clear as day-3 giant coronary aneurysms showed vividly on her third echocardiogram of the stay. The Kawasaki Disease had gotten to what doctors were trying to prevent from happening all along-her heart.
And, though, the disease has gone and left her body (lasts 4-6 weeks), 4 years after her hospitalization we are still dealing with preventative care, protecting her in every way we can from developing any further complications. Through this darkness, the light of God, and the medical team at Children's saved her, and us from never losing hope. And, as a parent, I will never give up on finding a cure so that there will be a day where no child will have to go through what Elli did, so that no parent will have to witness their child suffering. We look at our Elli, who is home and doing well, and we grateful every day, and will not stop fighting for a cure!
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