BENEFITING: ANGELMAN SYNDROME FOUNDATION INC
EVENT DATE: May 17, 2014
I would like to raise atleast $200.00 to support the Angelman Syndrome foundation and Emily Boice a child with the biggest heart, courage, and love I have ever seen. Two years ago I was in a wheel chair and down on myself as my health was on a decline but this little girl lifted my spirits with her smile and kept me fighting on and I would like to give back to her what she gave to me which was hope and strength to keep going. The walk for a cure which takes place in May needs your help to find a cure. Please donate if you can or for more details ask me about it!
What is Angelman syndrome?
Angelman syndrome is a complex genetic disorder that primarily affects the nervous system. Characteristic features of this condition include delayed development, intellectual disability, severe speech impairment, and problems with movement and balance (ataxia). Most affected children also have recurrent seizures (epilepsy) and a small head size (microcephaly). Delayed development becomes noticeable by the age of 6 to 12 months, and other common signs and symptoms usually appear in early childhood.
Children with Angelman syndrome typically have a happy, excitable demeanor with frequent smiling, laughter, and hand-flapping movements. Hyperactivity, a short attention span, and a fascination with water are common. Most affected children also have difficulty sleeping and need less sleep than usual.