BENEFITING: Epilepsy Foundation of Greater Los Angeles
ORGANIZER: Epilepsy Foundation of Greater Los Angeles
EVENT: Honda LA Marathon 2012
I am Running to raise awareness and funds for Research in Epilepsy and Dravet Syndrome. My Daughter Emily has been diagnosed with Dravet Syndrome and has been having uncontrolled seizures for 7 years now, and medication that's available now has not helped her at all. More research has to be done and there has to be more awareness. Seizure Disorders are rapidly growning in the world and specially in USA and yet the average person is not familiar with the word Epilepsy or Dravet, etc.. I have met so many brave parents and patients in the past few years that my daughter has been dealing with this syndrome and all of these people deserve a cure and a better life. The reseach has to be more and faster to keep up with the number of people being diagnosed every day. I am running for my daughter and for all the other son's, Daughters, Brothers, Sisters, Fathers, and Mothers Past and Present, who have been victims to Epileply, and all Seizure Syndromes.. Please help me by joining this cause by supporting Epilepsy Awareness. Thank You.. Ray
Epilepsy Foundation of Greater Los Angeles wrote -
Thousands of individuals like you are stepping up for the challenge of the Los Angeles Marathon and many are raising the bar of excellence by joining the END EPILEPSY TEAM!