Skip to content
joannedetora's profile image - click for profile

JOANNE DE TORA's Fundraiser:

MCM 2014

JOANNE's Photo
JOANNE's Photo

BENEFITING: Epilepsy Foundation

ORGANIZER: Epilepsy Foundation

EVENT DATE: Oct 26, 2014

JOANNE DE TORA

THE STORY:

In January 2012, a few weeks before his sixth birthday, our son Julian started exhibiting unusual behaviors.  Julian would take a deep breath, his eyes would droop and he would freeze for 5-10 seconds.  His kindergarten teacher began complaining he wasn't taking direction in class.  He also began stutturing.  We started to suspect that he was was hearing impaired.  

Julian was having absence seizures.  Unlike a grand mal seizure, an absence seizure is difficult to identify.  Some individuals smack their lips, have a blank stare or their eyes may roll up for a few seconds.   They can't hear or see during the seizure.  When the seizure is over they have no memory of any passage of time.  

We were lucky that Julian experienced an absence seizure during his exam with the pediatrician.  He was immediately referred to a pediatric neurologist.  The neurolgist confirmed that he has Absence Epilepsy.

Four days into his medication he was 100% seizure free.  Also, he completely stopped stuttering.  We realize how lucky we are.  We owe this to the many people who raised money for epilepsy research in the past.  

Unfortunately, many medicated individuals on the epilepsy spectrum still experience seizures.  I would like to raise money to help find better medications and a cure for them all.  

Please join me in the fight to end epilepsy as I run 26.2 miles at the Marine Corps Marathon in Washington, DC on October 26th.  Thank you!

 

DONATE

To This Fundraiser

$540

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Rosheen Erangey

    $40

  • Jillian & Mark DeKunder

    $25

  • Martin Fung

     

  • Luana

    $25

  • Amy Segall

    $25

  • Miles & Diane Lawrence

    $50

  • Claire Wihnyk

    $25

  • Klohn Family

     

  • Gaby Johnston

    $150

  • Lisa

    $20

  • Sari Poremba

     

  • Anonymous

    $15

  • Anonymous

    $40

  • To support Julian and JoAnne

    $25

  • Stacey & Robert Kaufman

     

  •  
  •  
  •  

Fundraise for this Campaign

The Team: $20,683 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

kim overaa

Amount Raised

$3,565

 

188% Raised of $1,900 Goal

Fundraiser Title

Scott Thorson

Amount Raised

$1,900

Fundraiser Title

Brendan Grainger

Amount Raised

$1,530

 

128% Raised of $1,200 Goal

Fundraiser Title

Jacob Crespin

Amount Raised

$1,528

 

102% Raised of $1,500 Goal

Fundraiser Title

Beth Schill

Amount Raised

$1,465

 

122% Raised of $1,200 Goal

Fundraiser Title

Kristen Cooper

Amount Raised

$1,446

 

121% Raised of $1,200 Goal

Fundraiser Title

Joel Wakesberg

Amount Raised

$1,363

 

136% Raised of $1,000 Goal

Fundraiser Title

Erinn Derby

Amount Raised

$1,280

 

85% Raised of $1,500 Goal

Donor Comments

Stacey & Robert Kaufman

Stacey & Robert Kaufman

JoAnne, We are so impressed with your drive and commitment ! Congratulations! 4 years ago

To support Julian and JoAnne

To support Julian and JoAnne

DONATION: $25

4 years ago

Anonymous

ANONYMOUS

DONATION: $40

4 years ago

Anonymous

ANONYMOUS

DONATION: $15

4 years ago

Sari Poremba

Sari Poremba

4 years ago

Lisa

Lisa

DONATION: $20

4 years ago

Gaby Johnston

Gaby Johnston

DONATION: $150

In memory of LT. Glenn Insprucker 4 years ago

Klohn Family

Klohn Family

4 years ago

Claire Wihnyk

Claire Wihnyk

DONATION: $25

Have an amazing race!!! 4 years ago

Miles & Diane Lawrence

Miles & Diane Lawrence

DONATION: $50

4 years ago