HERE's MY STORY:
This is my niece, Siena. Early one morning three and a half years ago the phone rang. My brother, sister-in-law and then four year old niece, Siena, were at the hospital. Siena had a grand mal seizure the night before. Paramedics were called and struggled for over 45 minutes to stabilize her. We were stunned. There was no indication prior to this day that she had Epilepsy. There was no family history. This caught us all by surprise.
Three and a half years after her first grand mal seizure with violent contractions Siena’s seizures are under control but she still suffers from brain sparking. You can’t tell when Siena is experiencing sparking, but it certainly has its residual effects on her. As a result, school is not easy and each day she tries desperately to keep up with her peers. Every day there are emotional and social struggles.
I am running the ING NY City Marathon with a purpose and goal. I will be running 26.2 miles to raise funds for the Epilepsy Foundation of Metropolitan New York, EFMNY. I started this journey last year in hopes of running the 2012 marathon. However, Superstorm Sandy delayed those plans. I am more determined than ever to complete this journey for this very worthwhile cause. I am thrilled to once again be raising money to help support the funding needed for education and to raise awareness for a disease that is often not talked about and often misunderstood. Please join me in my efforts.
Click the big 'DONATE' button above to support my efforts in raising funds for the Epilepsy Foundation of Metropolitan New York!
EPILEPSY INSTITUTE wrote -
Congratulations to our 2012 Epilepsy Road Warriors who were presented with the Mets Spirit Award at our 1st Annual Epilepsy Awareness Day at Citi Field on July 22nd. This will be the second year that our Warriors will take to the streets to raise funds to support our Into the Light Programs for epilepsy awareness, education and empowerment.
Click "The Team" tab above to learn more about our new team members and the 2012 warriors who will be representing the Foundation again this year.
Why do we run?
We run for the New York Metro Area's epilepsy community. We are a community of individuals and families affected by epilepsy, healthcare providers, advocates and industry partners. Together we'll go the distance until there is a cure.