May 19, 2016
May 19, 2016
Hi! I am Eric. I am an 18 year old Senior in High School. I have many talents including running, swimming, acting, and singing. This year during my Summer swim season I am going to swim in honor of my little brother, Darren, who was recently diagnosed with Epilepsy. I am honored to do this for my brother and all of those who are affected by this not so well known disorder in hopes of researchers finding a cure.
For those of you who don't know, Darren was diagnosed with Epilepsy in March 2016. One day out of the blue he had a seizure while laying on the couch at his Grandma's house after school. This brought us to the emergency room with a follow up visit to his primary care doctor and a referral to a CHKD Neurologist. Everything checked out fine with the tests from the emergency room and the initial exam by the Neurologists didn't show any damage. The Neurologist scheduled him for an EEG for April 15. Darren had a second seizure while at school on March 25. Another follow up visit with the Neurologist was scheduled and preventative medicine was prescribed. The Neurologist now ordered a MRI to be done on April 8. Darren fell asleep on the evening of April 5 and during his sleep had another seizure. A call to the Neurologist was made and she had us give him another dose of medicine and increased his daily dosage. Darren had his MRI done on April 8 and the results came back showing nothing wrong. For his EEG test day, we were directed to keep him up until midnight Thursday going into Friday with only half a dose of his medicine, then wake him up at 5am and no morning dose of medicine. My mom and grandma were tasked with keeping him awake until his appointment time of 1:30pm. They watched movies, did a puzzle and then at 8:13 am Darren had his fourth seizure. This one was kind of expected since he was tired and without his medicine. After each seizure, Darren sleeps for about 4-5 hours, so it was going to be an even harder task to keep him up. Mom called the EEG testing department and explained that he just had a seizure and they said to come in early and they will get him in. He was a real trooper that day. Now we wait for the results of the EEG and pray that it gives us answers as to why Darren is having seizures.
Please join me in the fight for a cure for all of those who are affected by Epilepsy. Not only does Epilepsy affect the individual, it affects those that care and love the person.