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Erin Finazzo

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Emily and Darren
Emily and Dar… SAYS:
Dear Erin and Family - Than…
Dear Erin and Family -
Thank you for your continued support!!! It means more than we could ever express in words!Thank you for your generous donation to The RYR -1 Foundation. We can’t tell you how much we appreciate your support for our cause, to find a cure for Klara and Maddie’s muscle disorder.
As you know, Klara and Maddie have a diagnosed congenital muscle disorder that affects every part of their lives, from simple things like eating and breathing to walking, and everything in between. These 2 girls, like many other children with muscle disorders, face many struggles and their playdate calendar is filled with therapy and doctors appointments. Yet, they continue to face each day with a smile and an amazing attitude. They are the strongest, bravest little girls we know.
Your thoughtful donation will go a long way in helping to find a treatment or better yet a cure for these sweet girls.
Thank you! Your donation has truly made a difference in Klara and Maddie’s future.
With gratitude,
Darren, Emily, Lily and Klara
1 year ago
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Emily and Darren
Emily and Dar… SAYS:
Friends and Family - We cann…
Friends and Family - We cannot begin to thank you enough for your donation to Cure CMD. Whether you supported a friend who was "running for Klara" or you are a personal friend of Klara's, your donations means the world. This year, we were able to raise over $12,000 for research!!!! Thank you!!!!
Klara was born with a rare form of CMD (Congenital Muscular Disease) and is severely physically delayed because of it. She is a fighter though, so we fight for her. Your donation to Cure CMD will go directly to support research for Klara's muscle disorder. Because Cure CMD is 100% volunteer run not for profit organization, the donations do not go to paychecks, it goes to research. Cure CMD also allows us to "earmark" the money we raise for Klara's specific muscle disorder - Central Core Disease (recessive form - RYR1-RM) - so you are truly making a difference in her future! Cure CMD is committed to finding cures and treatments for all forms of CMD. And hopefully one day, because of your donation, Klara will be able to stand, walk and run just like her friends.

If you would like to know more about Cure CMD - please check out their website at www.curecmd.org

Thank you again for your support and desire to be a part of something AMAZING.

The Pedersen Family
Darren, Emily, Lillian, and Klara

2 years ago
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Erin Finazzo
Moorestown, NJ United States
CROWDRISING SINCE: Mar 03, 2015
Stuff About Me:
The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scroll down and see if they have a fundraiser going so you can support 'em.

Erin
Finazzo

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I'm working on creating my first super compelling Fundraiser so please keep hitting refresh over and over until my first Fundraiser shows up. Or just wait for me to email you about it.