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Eva Flodstrom's Fundraiser:

Eva Flodstrom - LoveLiv Cycle

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BENEFITING: A FOUNDATION BUILDING STRENGTH INC

EVENT: LoveLiv Cycle

EVENT DATE: Mar 13, 2016

Eva Flodstrom

THE STORY:

For its fourth annual fundraiser benefitting A Foundation Building Strength (AFBS), LoveLiv will once again have a Soul Cycle ride! AFBS remains the only non-profit worldwide dedicated to finding treatment for Nemaline Myopathy, a rare muscle disease that Liv has. People with NM, including Liv, generally cannot eat, breathe and walk on their own. Life expectancy is greatly reduced due to respiratory complications. Although Liv has made great strides, she just turned 4 years old and still cannot walk or crawl, and relies on a feeding tube for some of her nutrition.  Like so many with NM, her speech is affected by severe muscle weakness in her mouth.  

With your help, we can find treatment to better Liv's life and those with NM.  AFBS is seeking to fund a gene therapy study for Nebulin based Nemaline Myopathy, targeting the same mutation Liv has.  If this study is successful, Liv could have treatment in a few years.  This is one of the most exciting proposals we have received and we need your help!   

DONATE

To This Fundraiser

$885

MONEY RAISED
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  • Eva Flodstrom

    $60

  • Eva Flodstrom

    $60

  • Forkner Family

     

  • vivian bang

     

  • Anonymous

    $100

  • Sabrina Tom & Apur Shah

    $100

  • Lana Choi

    $50

  • Eliah & Eric

     

  • Carol & Yogi

     

  • Ron and Chan

    $50

  • SUSANNE HARRIS, STIG FLODSTROM

    $100

  • The Petrigliano Family

    $50

  • Anonymous

    $100

  • Julie Schuck

    $40

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Donor Comments

Julie Schuck

Julie Schuck

DONATION: $40

3 years ago

Anonymous

ANONYMOUS

DONATION: $100

3 years ago

The Petrigliano Family

The Petrigliano Family

DONATION: $50

You have our support! 3 years ago

SUSANNE HARRIS, STIG FLODSTROM

SUSANNE HARRIS, STIG FLODSTROM

DONATION: $100

3 years ago

Ron and Chan

Ron and Chan

DONATION: $50

3 years ago

Carol & Yogi

Carol & Yogi

3 years ago

Eliah & Eric

Eliah & Eric

3 years ago

Lana Choi

Lana Choi

DONATION: $50

What a cutie! Looking forward to Sol and Liv's prom date in 10 years! :) 3 years ago

Sabrina Tom & Apur Shah

Sabrina Tom & Apur Shah

DONATION: $100

3 years ago

Anonymous

ANONYMOUS

DONATION: $100

3 years ago