BENEFITING: FANCONI ANEMIA RESEARCH FUND INC
EVENT DATE: May 01, 2016
First and most importantly, an enourmous thank you for all the love and support you have showed Evan, Becca and our family in the past. We are so blessed to call you family and friends! John and I are currently in Minnesota with Evan and Becca for four days of doctor appointsments, tests and bone marrow biopsies. Evan is starting to take on responsibility of being his own advocate at his appointments and managing his own results. We are so very proud of his maturity concerning FA and his bravery! We are now able to reason with Becca regarding lab draws, tests and clinic visits... except the tube she just had put down her nose at the ENT! She is still dreading the 'shot in her butt' (bone marrow biopsy), but you should have seen how she courageously offered up her arm for lab draws yesterday with no tears!
2016 is an off year for Evan's Enchanted Evening (And Becca Too!). Unfortunately, Fanconi Anemia does not take a year off. Children continue to suffer from bone marrow failure, multiple systemic issues and cancers because of the inherited genetic effects of Fanconi Anemia. The bright side is that research holds so many promises for better treatments and hopefully a cure. Please consider making a donation this year knowing 100% of your money will go directly to the Fanconi Anemia Research Fund (FARF). Then mark your calendar's for March 4, 2107 to enjoy a wonderful night of food, auctions and entertainment to benefit FARF and all those who endlessly battle Fanconi Anemia.
Please know your continued support of Evan, Becca and our family has been and will continue to be immensely appreciated!
Love, Kim and John Connelly (Evan and Becca too!)