BENEFITING: NYU Langone Medical Center
EVENT DATE: Mar 19, 2017
On March 19, I am running the United Airlines NYC Half Marathon in support of Team NYU FACES (Finding a Cure for Epilepsy and Seizures.)
As many of you know, our 8 year old son Kyle started having seizures just before the age of 3. The rollercoaster that followed included breakthrough seizures, medicine changes and horrible side effects, numerous hospital stays....leaving our happy little 3 year old overmedicated and disconnected.
Dr. Orrin Devinsky and his team at the NYU Comprehensive Epilepsy Center quickly found the right combination of medicine with tolerable side effects for Kyle, which has allowed him to remain seizure free for the past 4 years.
We are forever grateful, and never lose sight of where we have been, where we could be today...or what tomorrow may bring. This cause is so important to our family, not only for Kyle; but for all of the amazing families we have met along the way that are effected by epilepsy. For our friends who are balancing restrictive diets, several medicines and their intolerable side effects; who wake up with a positive outlook to face each day, but never know what lies ahead.
Please help Kyle and his friends find a cure.
TeamFACES is proud to run in the 2017 NYC Half Marathon among thousands of others as they race on behalf of important, meaningful causes. Our athletes will compete to spread epilepsy awareness and support for the mission of FACES while racing through the streets of New York City on March 19th! FACES (Finding a Cure for Epilepsy and Seizures) at NYU Langone Medical Center is dedicated to helping people and families living with epilepsy, through research, education, and clinical and community support programs. Funds raised by each runner will benefit research efforts to improve epilepsy care, educational materials and cost-free seminars, scholarship opportunities, family initiatives, and various events hosted by FACES throughout the year. To learn more about FACES, please view this short video
To join TeamFACES please contact Frances Salvo, Manager of Events - at firstname.lastname@example.org.