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Melanie Harmon's Fundraiser:

FACES at NYU Langone Medical Center NYC 2014

Melanie's Photo

BENEFITING: NYU Langone Medical Center

ORGANIZER: FACES

EVENT: 2014 TCS New York City Marathon

EVENT DATE: Nov 02, 2014

Melanie Harmon

THE STORY:

Inspired by my daughter Emily and her medical team at NYU, I will be running 26.2 miles in the New York City Marathon for Team FACES, Finding a Cure for Epilepsy and Seizures.

One year ago, we noticed our otherwise healthy Emily “spacing out” many times a day, for spells of about 10-20 seconds each.  At the age of six, Emily was diagnosed with Absence Epilepsy. It was a seemingly benign condition;  most children respond well to medication, and will eventually outgrow it. We were confident that Emily would be in that majority.

Unfortunately, medication after medication failed to control Emily’s seizures and her first grade school year was filled with blood tests and doctors appointments. The strong medications she tried brought with them fatigue, nausea and weight loss. The frequency of seizures increased and on May 31st, she suffered a Grand Mal seziure at home. She lost consciousness for a terrifying five minutes.

Seeking another expert opinion to help turn the tides for Emily, we met with Dr. Orrin Devinsky, Director of the Epilepsy Division at NYU Langone Medical Center. Emily was hospitalized for six nights for further testing and evaluation. The quality of care she received there was second to none and we agreed with the team’s proactive approach to Pediatric Epilepsy.  Emily began a new medication and the modified Ketogenic Diet. This diet is extremely restrictive, down to the shampoo and sunscreen she uses, as most products contain carbohydrates. Gone are all of a seven-year-old’s typical foods: cereals, breads, pasta, fruit, vegetables, and sugary treats. Instead Emily eats inordinate amounts of fat…butter, heavy cream and spoonfuls upon spoonfuls of oil.

Emily’s condition and treatment are overwhelming at times, but we are finally seeing some real change, with the unwavering support of Dr. Devinsky, Nurse Practitioner Erin Conway and Dietician Courtney Schnabel. This team is committed to bringing an end to Emily’s seizures, but they never lose sight of her quality of life. We are incredibly grateful to for their knowledgable and and compassion.

In 1994, Dr. Devinsky founded FACES, Finding a Cure for Epilepsy and Seizures. FACES funds cutting-edge research and programs for families living with Epilepsy. Like Dr. Devinsky, we are dreaming of a world without Epilepsy.  I can think of no better way to support his medical efforts than to raise funds for this important organization.

Despite the frustration and challenges Emily faces in her life, she remains spunky, brave and up for all things fun. She faces blood tests, hospital stays and EEGS with an unbelievable amount of courage . Her spirit will fuel my training for the New York City Marathon.  Like Emily, I will take one step at a time, my eyes on the light at the end of the tunnel.

When a child is diagnosed with Epilepsy, there is much fear, anxiety and confusion, but there is always hope. FACES embodies this hope…for seizure awareness, control, and eventually, a cure.

Thank you for your love and support, and above all, the gift of hope.

 

To learn more about FACES, please click here to watch our video 

 

 

$55,951

MONEY RAISED
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  • Kevin and Kathryn Poultney

    $20

  • Barbara Matus

    $0

  • Jonathan and Maureen Kaplan

    $0

  • Southboro House of Pizza Restaurant, Inc

    $0

  • McCarthy Pools Corp.

    $100

  • Sandra Torress

    $0

  • Sandra and Kenneth Hartnett

    $0

  • Howard & Jessica Korn

    $0

  • Shubhendu & Sumana Mimi Mukherjee

    $0

  • Russell and Barbara Devlin

    $0

  • John and Kelly Lehane

    $0

  • John and Donna Freeman

    $0

  • Alexander and Carrie Alpert

    $0

  • Daniel and Nicole Kelleher

    $0

  • Todd and Beth Alcock

    $0

  • Joseph & Amy Luiso

    $0

  • Todd Mitchell and Sara Grossman

    $0

  • James & Barbara Sadowsky

    $0

  • Michelle & Jason Schaufeld

    $0

  • Pearl Greenbaum

    $0

  • Scott & Jodie Sadowsky

    $0

  • Kim Hamill

    $0

  • Julie & Alan Osetek

    $0

  • Lawrence and Jody Epstein

    $0

  • Lori Donfrancesco

    $0

  • Paul & Camille Daqui

    $0

  • Brian and Anne Sinclair

    $0

  • Jon and Adriene Gingrich

    $0

  • John and Jennie Bogaert

    $0

  • Kim & John Jordan

    $0

  • Andrew and Johanna Elias

    $0

  • David & Rachel Lipkin

    $40

  • Southborough Dental Associates, LLP

    $0

  • Peter and Christy Christakis

    $0

  • Marc and Theodora Najarian

    $0

  • Bonnie and John Hamill

    $5,000

  • Carolyn Greenspan and Marshall Ruben

    $250

  • Jay & Julie Spivak

    $100

  • Geoffrey Karp

    $100

  • Peggy and Arthur Grodd

    $50

  • Clay Ingram

     

  • The Sherr Family

    $100

  • Anonymous

    $10,855

  • Emily Lyons

    $15

  • Todd, Lilly and ella

    $100

  • Anonymous

    $25

  • Putting for Purple Mini-Golf Fun-raiser

    $2,500

  • Zach Kesselman's grandmother

     

  • The Blum Family

     

  • Ivy and David Cohen

    $100

  • Andrea Kozinetz Holtz

     

  • Putting for Purple

    $9,326

  • The Alford Family

     

  • Dave & Diane McGuire

    $50

  • Putting Fundraiser

    $315

  • Jan Herzog & Jimmy Markson

    $18

  • Jen Siegal

     

  • Fundraiser Donations

    $275

  • Victor and Kathleen Delgado

    $50

  • Sue Smith and Family

    $26

  • Kerry Hill & Family

    $25

  • Piovoso Family

    $50

  • Anonymous

    $100

  • Dan Frank

     

  • Annonymous

    $100

  • Susan & Peter Lewis

     

  • Delaware Life Match

    $250

  • The Chiota Family

    $50

  • Annonymous

    $100

  • Allison and Scott Marx

    $100

  • Kelly and Summer Spier

    $100

  • Michelle, Matan and Sam Ben-Aviv

     

  • Laura Goldfarb

     

  • Jennifer & Christian Wright

     

  • The Antino family

     

  • Jill & Jason Evans

    $50

  • Cindy Evangelous

    $25

  • Wendy, Michael, Jonah and Lexi Sachs

     

  • Natalie, Darryl and Drew Matus

     

  • Meaghan

     

  • Ari,Ali, and Abby Seidenstein

    $100

  • Anonymous

    $200

  • Anne Jasinski

     

  • Israel Family

     

  • The Mack Family

    $100

  • Mara Reuben

     

  • Wendy Verret

    $50

  • Rachel and Andrew Goodman

     

  • The Esterson Family

     

  • Joel and Melissa Bauman

    $100

  • Lauren & Mike Schept

     

  • Anonymous

    $11

  • Lauri & Dave

    $100

  • Janet and David Lavine

    $100

  • the Bean Family

    $250

  • Anna Fisch and Andrew Fisch

    $180

  • Patty Weiner

     

  • Annonymous

    $100

  • Gail & Arnie Rosenberg

    $100

  • Annonymous

    $100

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140% Raised of $40,000 Goal

The Team: $118,217 TOTAL RAISED SO FAR

Fundraiser Title

Melanie Harmon

Amount Raised

$55,951

 

140% Raised of $40,000 Goal

Fundraiser Title

Susan Cohen

Amount Raised

$27,075

 

208% Raised of $13,000 Goal

Fundraiser Title

Lauren Heinlein

Amount Raised

$12,005

 

120% Raised of $10,000 Goal

Fundraiser Title

Katie McQuerrey

Amount Raised

$10,625

Fundraiser Title

Kevin Merritt

Amount Raised

$7,675

 

8% Raised of $100,000 Goal

Fundraiser Title

Richard Shane

Amount Raised

$3,068

 

31% Raised of $10,000 Goal

Fundraiser Title

FACES at NYU Langone Medical Center

Amount Raised

$1,818

 

5% Raised of $35,000 Goal

Donor Comments

Annonymous

Annonymous

DONATION: $100

4 years ago

Gail & Arnie Rosenberg

Gail & Arnie Rosenberg

DONATION: $100

Congratulations Melanie - Awesome!!!! 4 years ago

Annonymous

Annonymous

DONATION: $100

4 years ago

Patty Weiner

Patty Weiner

4 years ago

Anna Fisch and Andrew Fisch

Anna Fisch and Andrew Fisch

DONATION: $180

This is a belated contribution to your wonderful efforts to raise money for Epilepsy treatment and cure. I hope Emily is doing well and that running the Marathon was a great experience and you are recovering well. Andrew was so happy to see Josh this past weekend! 4 years ago

the Bean Family

the Bean Family

DONATION: $250

4 years ago

Janet and David Lavine

Janet and David Lavine

DONATION: $100

Melanie you are inspiring and simply amazing. What a cold, windy day you had to run the marathon but nothing could damper your spirits and energy. What a role model you are for your family as well as for all of us. Many many congratulations. Keep up the positive energy and we all are rooting for Emily. 4 years ago

Lauri & Dave

Lauri & Dave

DONATION: $100

4 years ago

Anonymous

ANONYMOUS

DONATION: $11

Had to get you over $55,000 before race started. You have done an incredible job and we are all so proud of you. Love you, K 4 years ago

Lauren & Mike Schept

Lauren & Mike Schept

4 years ago