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Michael Johll's Fundraiser:

FACES TCS New York City Marathon 2016

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BENEFITING: NYU Langone Medical Center

ORGANIZER: FACES

EVENT: 2016 TCS NEW YORK CITY MARATHON

EVENT DATE: Nov 06, 2016

Michael Johll

THE STORY:

I will begin by admitting, and for those that know me you will agree, I do not do vulnerable very well.  Thirteen years ago we unfortunately received membership in a club no one should have to be a part of. Thirteen years ago my wife Wendy was diagnosed with epilepsy and so began our journey.

Until epilepsy entered our lives I was always guided by the idea that I can work harder, smarter, get up earlier and stay up later to overcome what life threw at me. As a caregiver, this disease quickly beat that out of me. Hope and perseverance was replaced with fear, hopelessness and helplessness.

Our treatment journey led us to New York University Langone Medical Center and Dr. Orrin Devinsky, Kim Menzer, NP and Dr. Werner Doyle. After five years of treatment, in January of 2015, Dr. Doyle performed brain surgery on Wendy with the hope of reducing or even eliminating her seizures. As of this writing, Wendy has been seizure free and we are cautiously optimistic that it will continue. 

Epilepsy has taken me to the darkest places I have ever been in my life as a husband, a father, and as a caregiver.  The light is slowly returning to our family and with this positive transition has also come a deep sense of responsibility to help others in the same or similar fight.

Monies are continually needed to support the nonprofit organization founded by Dr. Orrin Devinsky, FACES (Finding a Cure for Epilepsy and Seizures). FACES supports research, scholarships, summer camps, housing and a plethora of patient and research initiatives.

I am competing in the NYC Marathon for all the caregivers that have been and still remain in the fight.  I am running for all those that have lost hope at the hands of this unforgiving disease and all of the areas it reaches into in a person’s life. I am also running for those who have lost the fight.  I am more specifically running for Larry Smart. Larry Smart lost his daughter Shanae to an accident related to an epileptic seizure in January of 2016. Larry experienced what we as caregivers live in constant fear of happening. May Larry and all the others who have lost loved ones find some peace through those who strive to find answers that will beat this heinous disease.

It is ironic that I will be running a marathon, 26.2 miles.  Thirteen years ago I first timed how long Wendy’s seizures lasted and it was 25 to 27 seconds.  Needless to say, the four and half hours it will take me to run the marathon will be less painful and feel much shorter than sitting through a seizure and waiting for Wendy to come to back to us.

Thank you for any tax deductible contribution that you can make to FACES.  Over 90% of the monies raised for FACES will directly fund activities that impact the cause and the epilepsy community.

Love,

Michael, Wendy, Samantha and Gregory Johll

$25,030

MONEY RAISED
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  • Marybeth Kennedy

    $100

  • Jan Hartwig

    $10

  • Anonymous

    $100

  • Fr. Pat Sullivan

    $25

  • Southwestern College

    $100

  • BECKY TUCKER

    $50

  • Ivan and Marilyn Dressman

    $50

  • Matt Koster

     

  • Betsy and Mike Klimeck

    $20

  • Bob and Linda

    $50

  • Leona Eggers

    $50

  • Matt, Sally, Ben, Alex and Nate Johll

    $1,000

  • Barb Johll

    $1,000

  • Betty Dellabella

    $25

  • Alex Johll

    $10

  • Chad Hahn

    $400

  • Daniel and Catherine Cotter

    $50

  • Mary Johll

    $40

  • Friends of Wendy

    $250

  • JOHN NICKLESS

    $100

  • Larry and Doris Parsons

    $50

  • Rinda and Jim Allison

    $1,000

  • Linda and Jimmy Schrib

    $75

  • Bob Robinson

    $100

  • Texas Men's Bible Study

    $510

  • Nanette and Joe Belew

    $350

  • The Grand Motel, Pembine, WI

     

  • Alice Crawford

    $20

  • Sue Disch

    $50

  • John and Julie Wiegman

    $20

  • Ed Wright

    $500

  • Rose Vine

    $30

  • Vickie McNeal

    $25

  • Margaret Shepherd

    $10

  • Anonymous

    $100

  • Cherie and Dennis Snavely

    $100

  • Debe Martin

    $25

  • Anonymous

    $25

  • Jane Belling

    $25

  • Anonymous

     

  • Dave and Sherry

    $20

  • Anonymous

    $50

  • Heather Johll

    $50

  • Susan and Kent Moya

    $25

  • Joni, Gary, Carly and Rachel Polkowitz

    $150

  • Anonymous

    $10

  • Tricia Walton

     

  • Justin, Staci, Avery and Rylan Hahn

    $50

  • Diane and Rob Frauchiger

    $1,000

  • William Frauchiger

    $100

  • Elizabeth Frauchiger

    $100

  • Ann and Reid Meyers

    $1,000

  • James Michael Nolan

    $250

  • Gayle Hemberger-Lee

    $25

  • Curtis Brant, Beth Babits & Family

    $250

  • Eric & Natalie Modell

    $250

  • Fran and Al Lanier

    $50

  • Peg Carlson

     

  • Gerald and Sheryl Gerstner

    $100

  • Paul and Judy Studer

    $50

  • Mary Johnson

    $40

  • Janice and Mark Johnson

    $25

  • Tim and Shelly Suther

    $1,000

  • Donald and Marilyn Engelken

    $75

  • Jerry and Joyce Stowell

    $500

  • Daniel and Jean Gerstner

    $100

  • Leo and Nancy Roeder

    $50

  • Dean and Carolyn Seematter

    $50

  • Sylvia Wapp

    $20

  • Hank and Betty Sisk

    $50

  • Rev. Harry Bury

    $50

  • Linda Dressman

    $50

  • Joe and Pam Horigan

    $30

  • Paul and Melody Tommer

    $25

  • Francis and Ann Kohman

    $25

  • Michael and Julie Caffrey

    $200

  • Tom Hilbert Insurance Agency

    $500

  • Robert and Joyce Roeder

    $100

  • John and Sharman Polson

    $100

  • Alan and Lori Mars

    $50

  • CES Group

    $4,000

  • Jerry and Pam Suther

    $1,000

  • Charles and Margaret Gerstner

    $500

  • Dusty & Kate Koch

    $200

  • Zach Bourquin

    $25

  • Jeff and Meredith Sleichter

    $500

  • Jane Robin

    $50

  • Sheree Gallion

    $50

  • KCoe Isom - Marc Johnson

    $500

  • Anonymous

     

  • Daniel Knoll

     

  • Jill and Jeremy Donelan

    $50

  • Brad and Jenny Brush

    $50

  • Linda Fincham

    $25

  • Haunted Hayrack Fund

    $250

  • Charles and Sandra Loiseau

    $50

  • Debra and Romas Sims

    $1,000

  • Phyllis Schuette

    $10

  • First Frankfort Insurance LLC

    $1,000

  • CrowdRise Donation

    $100

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The Team: $98,318 TOTAL RAISED SO FAR

Fundraiser Title

Michael Johll

Amount Raised

$25,030

Fundraiser Title

Emily Merritt

Amount Raised

$15,130

Fundraiser Title

Julian Gomez

Amount Raised

$7,537

 

151% Raised of$5,000 Goal

Fundraiser Title

Fernando Carneros

Amount Raised

$7,462

Fundraiser Title

Jacqueline Fournier

Amount Raised

$5,600

Fundraiser Title

Richard Shane

Amount Raised

$5,568

Fundraiser Title

Cassandra Steel

Amount Raised

$5,395

Donor Comments

CrowdRise Donation

CrowdRise Donation

DONATION: $100

3 years ago

First Frankfort Insurance LLC

First Frankfort Insurance LLC

DONATION: $1,000

3 years ago

Phyllis Schuette

Phyllis Schuette

DONATION: $10

3 years ago

Debra and Romas Sims

Debra and Romas Sims

DONATION: $1,000

3 years ago

Charles and Sandra Loiseau

Charles and Sandra Loiseau

DONATION: $50

3 years ago

Haunted Hayrack Fund

Haunted Hayrack Fund

DONATION: $250

Tribute to the Johll Family 3 years ago

Linda Fincham

Linda Fincham

DONATION: $25

3 years ago

Brad and Jenny Brush

Brad and Jenny Brush

DONATION: $50

Thank you for continuing to inspire. 3 years ago

Jill and Jeremy Donelan

Jill and Jeremy Donelan

DONATION: $50

3 years ago

Daniel Knoll

Daniel Knoll

3 years ago