Fairley Baker

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Kira
Kira SAYS:
To all the wonderful people …
To all the wonderful people who are supporting my Athletes vs. Epilepsy Fundraiser,

On the eve of my race I wanted to send a quick note thanking each and every one of your for your support. 48 different families/individuals have taken the time to make a contribution, and together you have raised $2195 for the Epilepsy Foundation of America. I am so grateful to each of you.

It has been so fitting that I spent much of the past week with Annika in the Epilepsy Monitoring Unit at CHOP in an effort to better understand her seizures and to guide her future treatment. It was a very successful admission - which means that she had multiple seizures and they were able to capture them on EEG and see where they are originating in her brain. It was important to do this, but each seizure takes a little more out of her, and breaks my heart a little bit more.

It is impossible to say right now what Annika's long-term prognosis is. There are some hopeful signs and some discouraging ones, and we just need to keep going down the path we are on. But what I can say for certain is that this year another 150,000 people will be diagnosed with epilepsy in the United States, and millions more around the world. And epilepsy research is still massively underfunded, and the condition itself is still woefully misunderstood.

With your contribution, each of you have begun to make a difference with this. Thank you!

I am excited for my race and will let you know how it goes tomorrow!

With love to each of you,

Kira
4 years ago
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Kira
Kira SAYS:
Fairley, Thank you so much …
Fairley,

Thank you so much for your generous donation! It means the world to me, and brings us that much closer to a cure for epilepsy. I truly appreciate it.

I will share more with you about my training and progress as I get closer to the November date of the Half Marathon.

Thank you again,
Kira
4 years ago
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Fairley Baker
Fairley Baker
Philadelphia, PA United States
CROWDRISING SINCE: Sep 15, 2014
Stuff About Me:
The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scroll down and see if they have a fundraiser going so you can support 'em.

Fairley
Baker

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