2nd annual Fragile X Families of Northern Virginia Family Fun Walk
EVENT DATE: May 17, 2014
FUNDRAISER SET UP DEADLINE: May 05, 2014
Registration is now closed. Please email NorthernVA@fragilex.org if you would like to attend.
IMPORTANT: A donation is not a registration. WALKERS must use the REGISTER button in order to join the walk.
TIME - 9AM - 1 mile walk begins (please arrive by 8:30AM)
LOCATION - Burke Lake Park - 7315 Ox Road - Fairfax Station - Virginia
DETAILS - $35 per adult (includes t-shirt) and $15 per child (includes t-shirt) Children under 4 are free. Entrance fee to the park is waived before 9AM
Walk registration deadline is May 5th, 2014
Donation deadline - NEVER!
Please visit our website for more details
Corporate Sponsors Information here - deadline is May 1st
One mile Family Friendly walk at the beautiful Burke Lake Park. Afterwards enjoy music, train ride, refreshments, snacks, video arcade truck and lots of fun!
Please join us to help raise both awareness and critically needed research dollars! Recent groundbreaking research and clinical trials are offering hope to individuals with Fragile X. As many as 1 out of 130 women are carriers of the Fragile X gene and are at risk.
In addition to our search for a cure, we are raising funds to provide Fragile X experts to our families, teachers and therapists. Our children will then receive the most current and appropriate therapeutic/teaching strategies.
Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism or autism spectrum disorders. It can cause learning and behavioral challenges ranging from mild to severe. Over 1,000,000 individuals nationwide have, or are at risk, of developing a Fragile X disorder.