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2nd annual Fragile X Families of Northern Virginia Family Fun Walk

$45,681

 

91% Raised of $50,000 Goal

2nd annual Fragile X Families of Northern Virginia Family Fun Walk Photo

The Story

EVENT DATE: May 17, 2014

FUNDRAISER SET UP DEADLINE: May 05, 2014

Registration is now closed.  Please email NorthernVA@fragilex.org if you would like to attend.

 

IMPORTANT: A donation is not a registration.  WALKERS must use the REGISTER button in order to join the walk.

TIME - 9AM - 1 mile walk begins (please arrive by 8:30AM)

LOCATION - Burke Lake Park - 7315 Ox Road - Fairfax Station - Virginia

DETAILS -  $35 per adult (includes t-shirt) and $15 per child (includes t-shirt)  Children under 4 are free.  Entrance fee to the park is waived before 9AM

Walk registration deadline is May 5th, 2014

Donation deadline - NEVER!

Please visit our website for more details

Corporate Sponsors Information here - deadline is May 1st

One mile Family Friendly walk at the beautiful Burke Lake Park.  Afterwards enjoy music, train ride, refreshments, snacks, video arcade truck and lots of fun!

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Please join us to help raise both awareness and critically needed research dollars!  Recent groundbreaking research and clinical trials are offering hope to individuals with Fragile X.  As many as 1 out of 130 women are carriers of the Fragile X gene and are at risk.

In addition to our search for a cure, we are raising funds to provide Fragile X experts to our families, teachers and therapists.  Our children will then receive the most current and appropriate therapeutic/teaching strategies. 

Fragile X syndrome (FXS) is the most common cause of inherited intellectual disability and the most common known genetic cause of autism or autism spectrum disorders. It can cause learning and behavioral challenges ranging from mild to severe. Over 1,000,000 individuals nationwide have, or are at risk, of developing a Fragile X disorder.

 

 

Team Organizer's Photo

Team Jimmo

Amount Raised:

$12,647

Team Organizer's Photo

Sponsors

Amount Raised:

$17,470

Team Organizer's Photo

Team Livy and Logan

Amount Raised:

$3,255

Team Organizer's Photo

Nico's 2014 Team

Amount Raised:

$3,745

Team Organizer's Photo

Creighton Family 2014

Amount Raised:

$2,002

Team Organizer's Photo

Support Team Livy & Logan 2014

Amount Raised:

$1,942

Team Organizer's Photo

Team Brooksie

Amount Raised:

$1,915

Team Organizer's Photo

Anthony 2014

Amount Raised:

$735

Team Organizer's Photo

Team Max

Amount Raised:

$380

Team Organizer's Photo

Team NANA (Helen)

Amount Raised:

$270

Team Organizer's Photo

Oorbeek Family

Amount Raised:

$25

Team Organizer's Photo

Girl Scout Troop #3528

Amount Raised:

$0