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Robert Termini's Fundraiser:

Family takes Extreme steps to support The Cystic Fibrosis Foundation

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Robert Termini

THE STORY:

Family takes Extreme steps to support The Cystic Fibrosis Foundation
• Edgewater X-STREAM Hike for Cystic Fibrosis September 27, 2014 10:00 AM
Grandfather and daughter walk to support Ariana Termini, Daughter of Dominic Termini, United States Air Force, McGuire AFB, N.J. who suffers from Cystic Fibrosis.

Details:
My granddaughter, Ariana, [born November 23, 2010] at 18 days old was officially diagnosed with Cystic Fibrosis, a fatal disease affecting an estimated 30,000 children in the U.S.
On Saturday, September 27, 2014, my daughter, Anna is participating in the Maryland Chapter of the cystic fibrosis foundation - 2nd Annual XTREME HIKE TO CURE CYSTIC FIBROSIS. In just one day, Anna will hike a 20.1 mile stretch of the Tuscarora Trail in the George Washington National Park to raise funds and awareness for the CF Foundation's Mission to find a cure for cystic fibrosis.
For so many reasons, I can’t do the Xtreme hike, but to show my support and commitment to Ariana I created my own X-STREAM-WALK. On the same day Anna takes on her extreme hike, I will walk the 5.1 mile length of Shore Drive in Edgewater. Starting and ending at the LTPOA Community Hall, my walk will be less extreme than the 20.1 miles Anna will do, but in spirit every step will be just as significant.
We invite you to join us as a partner of the 2014 X-STREAM HIKE. I will wear a special shirt created specifically for the event naming sponsors who choose to generously donate to the CF Foundation. Donations can be made directly to the C.F. website or contact Robert Termini for details.

About the Disease:
Cystic fibrosis (CF) is a life-threatening genetic disease that primarily affects the lungs and digestive system. An estimated 30,000 children and adults in the United States (70,000 worldwide) have CF. In people with CF, a defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections. The pancreas becomes obstructed and stops natural enzymes from helping the body break down food and absorb vital nutrients.
In the 1950s, few children with CF lived to attend elementary school. Since then, tremendous progress in understanding and treating CF has led to dramatic improvements in the length and quality of life for those with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.

About The Cystic Fibrosis Foundation:
A nonprofit, donor-supported organization, the Cystic Fibrosis Foundation is the world’s leader in the search for a cure for CF. The Foundation funds lifesaving research and works to provide access to quality, specialized care and effective treatments for people with CF.
Nearly every CF drug available today was made possible because of Foundation support. Through its efforts, the life expectancy of a child with CF has doubled in the last 30 years, and research to find a cure is more promising than ever before.
Ariana Termini born November 23, 2010. At 18 days old, Ariana was officially diagnosed with Cystic Fibrosis.
Robert Termini (Ariana’s Grandfather), Age 54, Edgewater MD
Dominic Termini (Ariana’s father), Age 27. Active duty United States Air Force, McGuire Air force Base, N.J.
Anna Termini (Ariana’s Aunt) Age 24, Baltimore MD.

The Team: $0 TOTAL RAISED SO FAR

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