Family Medical & Christmas Fund
Organized by: Crystal Holt
My name is Crystal. Five years ago I had a craniotomy. For the last two years my condition has gotten progressively worse. In the last year alone I had to undergo three oral surgeries and two sinus surgeries. Local doctors labeled me complicated awhile ago, so I have to travel out of the area to be seen by specialists. The specialists I had visited were able to diagnose me. But I spent thousands traveling. Finally in the last month or so have I been diagnosed with Wegener's Granulomatosis Vasculitis with CNS involvement. It is an extremely rare autoimmune disorder which attacks every part of your body. I will need to undergo brain surgery in order to remove a mass from my brain and have my sinuses need to be completely rebuilt at the same time. The barrier between the brain and sinuses has broke down. It is now only seperated by scar tissue. I am currently on chemo, as well as medications to relieve pressure in the skull. In addition to all this I have diabetes and live in a building where the roof leaks and the presence of mold is likely. And due to my condition I am unable to work, and disability doesn't even cover daily expenses. I am 34 year old single mother of four, and asking for help isn't easy for me. Also, my youngest is Autistic. Due to the severity of my condition this could very well bey last Christmas with my children. I am raising this money and it will be used for bills, travel expenses, Christmas with the kids and hopefully a change in living situation. Due to exhausting so much needless effort up until now, it has depleted most of my resources. The doctors bills are astronomical. John hopkins and mount Sinai are considering my case, but I am out of money for traveling. And the surgery is my only chance. No one local will do it. Wegener's destroys the kidneys, and the medication I am on to relieve the pressure in my skull does the same. I am praying for enough in donations to cover the expense of traveling, the copay's, catch up on some of my everyday bills, as well as money to move to a better healthier environment being I the treatment for me is to destroy my immune system and a chance to give my children a memorable Christmas. This may be our last together. I am fighting will all I have. And praying with all my heart. But I know if it's my time, it's my time. I just want a chance. Without the surgery, I don't have one. So as hard as it is to ask for help, and as hard as it is to continue to fight, I am have 4 little people that make me humble enough to ask and strong enough to keep going when in feel like I can't anymore, a nd grateful enough to know any help I get is better than what I have now, .