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PAULA DE DIEGO's Fundraiser:

Fanconi Documentary

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Help me to film the documentary!!!would be very useful for many families with children with Fanconi  See more




My name is Paula De Diego. I'm 32 years old and I live in Buenos Aires,
Argentina. I'm a producer in differents areas (line producer, location
manager, production asssistant, prodution manager,etc) and different
projetcs, like movies, documentaries, videoclips,etc.
Five years ago I was diagnoses with Fanconi Anemia (FA), a disease that my younger sister Julieta also had since she was 6. She passed away almost 3 years ago, victim of this terrible medical condition.
Right now I am currently stable, and yet I am not under any treatment that requires heavy medication.
This is a disease unknown to most people because it is very rare, and there are few people in the world that have approximately 3,000 worldwide.
So I decided to make a documentary on Fanconi anemia, for the purpose of interviewing both patients and relatives of people who suffer, as well as to professionals who specialize in this disease,and this material may prove useful both AA patients and families to susu and physicians.
I contacted several foundations, agencies and families of sick children, commenting on this initiative, both in Europe and in USA and the rest of the world.
I really would love to have the opportunity to travel and meet specialists in the disease.
I would like to interview these people and then spread to my documentary, not only in film festivals and documentaries, but also through the internet and in the medical environment, and through all possible channels, so that people know about this disease, and for them to serve patients suffering from it. I would also like to create a website, go there and running the various interviews he has, throughout the documentary, and also create an avenue of communication between people who suffer.
well as those who already have it, to know that this is best and where to go, and the latest news, etc, etc.
For this reason, I am sending this letter months ago to the institutions, and global health partnerships, and various sites and / or companies that they might help raise funds for this documentary, is very valuable for the project., so take the decision to send this email not just famous people, but ordinary people who might know something about this disease, with the hope that they can help me.And any aid, however small it may seem.

This is the official website of Fanconi, to learn more about the disease:

and this is my blog:



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