BENEFITING: Friedreichs Ataxia Research Alliance Fara
ORGANIZER: Friedreichs Ataxia Research Alliance Fara
Following the finish of my first marathon, I received a gift that said, "It always seems impossible until it is done." During my training, last year, there were several days when getting to the 26.2 mile finish line felt like it might be impossible. However, Team FARA and the Friedreich's Ataxia (FA) community has taught me that in the face of uncertainty to stop the doubt and do the work. Friedreich's Ataxia is a rare, progressive neuro-muscular disease affecting coordination, balance, speech, vision and hearing. It can also include diabetes, scoliosis and life shortening heart complications. Currently, there is no treatment or cure. Despite these challenges, my FAmily living with FA does the work every day- they show up for school, for work, for their families, for fundraising, for awareness and for research. I joined the Friedreich's Ataxia Research Alliance (FARA) 9+ years ago because I believed the organization was poised to make a difference in treatments for this rare disease but also because the community showed unparalleled energy and courage. I am honored to be a small part of this FAmily and to be in the company of so many remarkable people- doing the work. Please join us in that work. Please consider a donation to FARA in support of FA research. Together we will cure FA!
Donations can be made online through this fundraising page or by check to:
533 W Uwchlan Ave
Downingtown, PA 19335
(Please note Felicia DeRosa's Team FARA in the memo line of the check.)