BENEFITING: Friedreichs Ataxia Research Alliance Fara
ORGANIZER: Friedreichs Ataxia Research Alliance Fara
One year, on a whim, my Dad suggested that he, my sister and I go to NYC to watch the marathon. He had been a spectator a few years earlier and professed there to be nothing like the energy of being there in person. Our chosen viewing spot was just under the 59th Street bridge, at the start of the 1st Avenue stretch in Manhattan. A popular spot, which also doubled as good cover when the sky openned up and poured rain. Despite the wet weather, the crowd and the energy all lived up to expectation, and I tucked away running NYC on the quiet bucket list in my head.
After a long hiatus since high school, I get back into a running. It was a few years ago and came as a result of some positive peer pressure from my cousin Jen, an invite to run a 10K with FARA's Team Donovan and from hanging around Kyle (who showed me that perceived physical limits are bs). After the 10K, we started running 1/2 marathons about once a year. The NYC marathon remained on the quiet bucket list in my head - and for a while I believed it was something I liked in theory but couldn't really do- until this year.
I'm running for a lot of reasons. There's some nostalgia with my Dad who first got me into running. There's an affinity for NYC, where I lived and worked for ~8 years. Then there's the fact that I don't know exactly how I'll get to the finish line. I question whether I'll be able to keep up with the training schedule, if I'll be able to figure out a fuel plan I can tolerate blah, blah, blah.
However, Team FARA and the Friedreich's Ataxia (FA) community has taught me that in the face of uncertainty to stop the questioning and the doubt and do the work. Friedreich's Ataxia is a rare, progressive neuro-muscular disease affecting coordination, balance, speech, vision and hearing. It can also include diabetes, scoliosis and life shortening heart complications. Currently, there is no treatment or cure. Despite these challenges, my FAmily living with FA does the work every day- they show up for school, for work, for their families, for fundraising, for awareness and for research. I joined the Friedreich's Ataxia Research Alliance (FARA) 8+ years ago because I believed the organization was poised to make a difference in treatments for this rare disease but also because the community showed unparalleled energy and courage. I am honored to be a small part of this FAmily and to be in the company of so many remarkable people- doing the work. Please join us in that work. Please consider a donation to FARA in support of FA research. Together we will cure FA!
Donations can be made online through this fundraising page or by check to:
533 W Uwchlan Ave
Downingtown, PA 19335
(Please note Felicia DeRosa's Team FARA in the memo line of the check.)