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Jamie Young's Fundraiser:

Team FARA NYC 2016

Jamie's Photo
Jamie Young

THE STORY:

My little sister Emily (age 20) was diagnosed with Friedreich’s ataxia (FA) 8 years ago. Friedreich's Ataxia is a rare, progressive neuro-muscular disease affecting coordination, balance, speech, vision and hearing.  It can also include diabetes, scoliosis and life shortening heart complications.  Emily’s progression of the disease is very typical. She currently uses a wheel-chair full time, experiences fatigue and heart disease.  There is currently no treatment or cure for the disease.  

Emily inspires my family and friends everyday to live our lives full and happy.  It’s very rare not to find my sister and I together smiling or laughing hysterically with and at each other. Over the past 8 years my family has found strength from doing everything we can to raise funds and awareness to find a treatment and a cure for FA by supporting the Friedreich’s Ataxia Research Alliance (FARA). We have been blessed with a local community of friends dedicated to do the same.

 I am always in amazement of how my sister handles her diagnosis with grace, fight and smiling through any challenge.  Emily has taught me that limits are like the monsters under our beds; they only exist if you believe in them. She has inspired me to run the NYC Marathon on Nov. 6 for Team FARA to raise funds for research for FA.

Training and completing the marathon will be one of the toughest physical and mental things I have ever done...  But every time I feel tired and don’t want to get out of bed to train, every time I think of stopping - I see my sister, smile and gut it out.

For more information please visit curefa.org

$4,805

MONEY RAISED
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  • Anonymous

    $100

  • Anonymous

    $515

  • Brian, Erin, Madison, Madison' sister

    $50

  • Jenni

    $25

  • Gary & Michele

     

  • Julie Jenson

    $100

  • Kristen Hood

    $100

  • Ann & Mike

     

  • Frank and Lynne Titus

     

  • Marcy Predmore-McPhee

    $100

  • Mike Dean

    $100

  • Anonymous

    $50

  • Patti and Chris McLearie

    $50

  • Matthew barnabei

    $25

  • Kathleen and Michael Dean

    $100

  • Anne & Joseph DeRosa

    $100

  • Kim and Matt Pitts

    $100

  • Anonymous

    $2,540

  • Emily Young

    $100

  • Anonymous

    $100

  • Jennifer Farmer

    $100

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120% Raised of$4,000 Goal

The Team: $40,009 TOTAL RAISED SO FAR

Fundraiser Title

Tom Batta

Amount Raised

$22,471

Fundraiser Title

Lucy Braid

Amount Raised

$7,258

Fundraiser Title

Jamie Young

Amount Raised

$4,805

 

120% Raised of$4,000 Goal

Fundraiser Title

Felicia DeRosa

Amount Raised

$4,000

 

100% Raised of$4,000 Goal

Fundraiser Title

Sathiji Nageshwaran

Amount Raised

$1,475

Fundraiser Title

Friedreichs Ataxia Research Allianc...

Amount Raised

$0

 

0% Raised of$25,000 Goal

Fundraiser Title

Tina Buri

Amount Raised

$0

Donor Comments

Jennifer Farmer

Jennifer Farmer

DONATION: $100

You Got This! 2 years ago

Anonymous

ANONYMOUS

DONATION: $100

You got this.... (hugs) 2 years ago

Emily Young

Emily Young

DONATION: $100

Good luck Jamie, love you!! 2 years ago

Anonymous

Anonymous

DONATION: $2,540

2 years ago

Kim and Matt Pitts

Kim and Matt Pitts

DONATION: $100

2 years ago

Anne & Joseph DeRosa

Anne & Joseph DeRosa

DONATION: $100

2 years ago

Kathleen and Michael Dean

Kathleen and Michael Dean

DONATION: $100

Good luck with the race and God bless. 2 years ago

Matthew barnabei

Matthew barnabei

DONATION: $25

Go Jaime! 2 years ago

Patti and Chris McLearie

Patti and Chris McLearie

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

DONATION: $50

Go Team FARA!!!! 2 years ago