BENEFITING: Huntington's Disease Society of America, Inc.
EVENT DATE: May 22, 2011
HOURS PLEDGED: 120
My name is Morgan McLane and I am sponsoring this Autocross for my aunt, Barbara Lee Scott, who was diagnosed with Huntington’s Disease in December, 1999. I have followed her struggle with this disease with a great deal of interest and sadness.
Let me tell you a little about her, she was born May 20, 1943 a healthy, happy baby. She won many “Beautiful Baby” awards. She started her working career as a secretary. Aunt Barbara married Dan Scott and had 2 daughters named Heidi and Jessica. Her daughters, my cousins, each have two children. Heidi has 2 daughters, Gianna and Cara, and Jessica has 2 sons, Ronnie and Gage. Her life was turning out to be just as she dreamed. In her 40’s her personality changed and her life changed. Looking back, this was when we realized that this was the beginning of her Huntington’s Disease. She lost her job, then the ability to drive, then finally the ability to live alone. In 2005, she was placed in a nursing home. She is now confined to a wheelchair, has difficulty in speaking, swallowing and has involuntary movements (chorea). In 2008 she was moved to Woodhaven Care Center in Monroeville, so she can be closer to her family.
As her family, we do not know what she remembered or retained, but what we do know is she loved chocolate and having her family near, especially her 4 grandchildren. We got a quick education on the disease, sadly she passed on April 15th 2010. I am hoping to make a difference in the public awareness of Huntington’s with the proceeds of this event going to the Huntington’s Disease Society.