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Niamh Goulding's Fundraiser:

Familial Dysautonomia Cycle Tour

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Niamh Goulding

THE STORY:

I am riding in the 9th Annual Tour de Foliage Cycle Tour on September 23rd to raise funds for familial dysautonomia (FD) treatment and research. FD is a rare Ashkenazi Jewish genetic disorder that affects the autonomic and sensory nervous systems, which control all involuntary bodily functions. Every physical function that we take for granted is affected by FD; problems with chewing, swallowing, balance, coordination, pain sensation, temperature sensation and blood pressure control are just some of the symptoms.

The Dysautonomia Foundation was founded in 1951, shortly after the disease was first identified in the United States. The Foundation is a 501(c)3 nonprofit public charity that funds the world’s only two FD treatment centers. As a result of the work of these centers, quality of life and life expectancy for people with FD has improved significantly. For more information on this disorder and the Dysautonomia Foundation, please go to http://www.familialdysautonomia.org.

Because FD is so rare, funding for research primarily comes from reaching out to family and friends of those afflicted with the disease. To that end, I am asking you to consider any level of support for my efforts to help raise money for FD research. Your support is greatly appreciated by me and by the families whose lives are forever changed by FD. Thank you so much for considering this request.

DONATE

To This Fundraiser

$70

MONEY RAISED
  • Anonymous

    $10

  • Clodagh

    $30

  • Natasha

    $30

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  •  
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23% Raised of $300 Goal

Fundraise for this Campaign

The Team: $70 TOTAL RAISED SO FAR

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Donor Comments

Natasha

Natasha

DONATION: $30

5 years ago

Clodagh

Clodagh

DONATION: $30

5 years ago

Anonymous

ANONYMOUS

DONATION: $10

5 years ago