Fighting for my Right to Life!
Organized by: Kendra Cuyler
In 2012 my life was turned upside down after being exposed to toxic mold at a hotel in Columbus, Ohio. Within a week of checking into the hotel I was taken by ambulance to a hospital about 5 times in 10 days and finally admitted with pneumonia, bronchitis and other symptoms of severe toxic mold exposure. I was treated with IV vancomycin and other antibiotics and was left to weak to even take a shower by myself. ( While I was hospitalized a friend gathered my things from the bad hotel and put them in the back of my SUV. After being discharged from the hospital and spending a few weeks at a different hotel I tried to get some things out of my car and developed severe chest pains. I ended up back in the hospital to find myself being treated with IV nitroglycerin for a suspected heart attack. Eventually they ruled out a heart attack and concluded it was a problem with my gall bladder. After 4 months of multiple hospital admissions & ER visits (over $200,000 in medical bills) I sought assistance from a biotoxin specialist in Chicago and relocated to the Chicago area. Lab tests showed that I was genetically susceptible to being severely affected by toxic mold and other biotoxins. My TGFb-1 was extremely elevated (over the top of the range) and my MSH (alpha melanocyte stimulating hormone) was only 0.7 -- extremely low. Despite months of treatment my condition failed to improve and my doctor finally insisted that I had to move out of my apt because my continued symptoms were consistent with ongoing exposure to biotoxins. Since that time (April 2014) I have not been able to find a place to live that does not trigger severe reactions. Experts in the biotoxin field state that a person can not recover if they face continued exposure to toxins. So, I'm living out of a suitcase -- continually searching for a safe place to live and I spent some time staying with my mother, after a car accident where my car was totaled by a drunk driver. I seemed to do better at my Mom's (despite also needing to recover from the car accident injuries), but it made my sisters very angry -- so angry that they kept demanding that I kill myself --- to *preserve their inheritance*. I didn't take them seriously -- at first -- but they continued to complain to my mother about my presence in her home -- telling my mother (our mother) that: It [wasn't] right, [wasn't] fair to them that she was allowing me to stay with her. They finally persuaded my mother to insist that I leave even though I didn't have a place to go and was still very sick & dealing with injuries. I was devastated by their actions and cruel remarks. They didn't even care enough to inquire or speak to me about my medical issues which are thoroughly documents by leading specialists. To justify their conduct they have attempted to portray me in a very negative way -- claiming that I'm not really sick -- that I simply have "bad habits" and that I've made "poor choices". They don't believe that I will be able to find a place to live and they expected that I would freeze to death being forced to sleep in my car over Xmas. I am fortunate to have a few friends who have stood up for me and helped me stay in a low cost hotel while looking for permanent housing, but they are also sick and can't provide ongoing assistance. My medical bills continue to accumulate and I can't afford treatment because so little is covered by my insurance. I need to raise money to pay ongoing medical bills so I can try to recover and to provide non-toxic housing. I'm not suicidal, even though I am disabled and very ill, and I don't believe that I should be bullied into killing myself so my sisters can go on shopping sprees and take multiple annual cruises around the world. My mother already took care of the inheritance issue by completely dis-inheriting me and now cutting me off from all contact to satisfy my sister's demands. I hope to raise enough money to get sufficient medical treatment to recover -- and to build a tiny house so that I will have a safe place to live. I have always given 110% to every endeavor but I can't do it by myself anymore. I can no longer manage day to day without adequate treatment and without finding the support of a community.