BENEFITING: American Friends of Tel Aviv University
ORGANIZER: Find a Cure for VWM
My name is Lilly. I'm 9 years old. Ever since I was 6 years old, I wanted to make a difference and Find a Cure for VWM. I do not like VWM because it makes kids sick and I don't want that.
My cousin, has this disease, she can’t walk very well and her head is very fragile. I know that my family is doing everything they can so Prof. Orna Elroy-Stein can make a “pill” for my cousin. I've been saving pennies and instead of my birthday presents, I've asked my family to donate to VWM research. We still have a ways to go. We are joining forces with Saving Chloe Saxby and together we are hoping to raise $ 2.6 millions needed for research..... but we need your help. Can you please help us ? Can you be our SuperHero ?
To learn more about VWM see: http://chloesaxby.com.au/
To learn more about Prof Orna Elroy-Stein VWM research see: http://www.elroystein-tau.com/
To read about my cousin see: https://medium.com/leukodystrophy-awareness/cure-for-isabella-d84ef3207f8e#.j154daqs8
Thank you very much ! Love, Lilly