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Lilly's Mission To Find A Cure For VWM's Fundraiser:

Find a Cure for VWM - vanishing white matter disease (VWM)

Lilly's Mission's Photo
Lilly's Mission To Find A Cure For VWM

THE STORY:

My name is Lilly. I'm 9 years old. Ever since I was 6 years old, I wanted to make a difference and Find a Cure for VWM. I do not like VWM because it makes kids sick and I don't want that.

My cousin, has this disease, she can’t walk very well and her head is very fragile. I know that my family is doing everything they can so Prof. Orna Elroy-Stein can make a “pill” for my cousin. I've been saving pennies and instead of my birthday presents, I've asked my family to donate to VWM research. We still have a ways to go. We are joining forces with Saving Chloe Saxby and together we are hoping to raise $ 2.6 millions needed for research..... but we need your help. Can you please help us ? Can you be our SuperHero ?

see - https://medium.com/leukodystrophy-awareness/be-a-superhero-help-findacureforvwm-51cb382396ac#.6fynfhmhq

To learn more about VWM see: http://chloesaxby.com.au/

To learn more about Prof Orna Elroy-Stein VWM research see: http://www.elroystein-tau.com/

To read about my cousin see: https://medium.com/leukodystrophy-awareness/cure-for-isabella-d84ef3207f8e#.j154daqs8

Thank you very much ! Love, Lilly

DONATE

To This Fundraiser

$148

MONEY RAISED
  • Anonymous

    $25

  • Lilly's Mission to Find a Cure for VWM

    $123.54

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The Team: $443 TOTAL RAISED SO FAR

Fundraiser Title

Erika Mealhow-Havlik

Amount Raised

$210

Fundraiser Title

Sweet and Spunky Savannah

Amount Raised

$50

Fundraiser Title

Find a Cure for VWM Leukodystrophy

Amount Raised

$35

 

0% Raised of $100,000 Goal

Fundraiser Title

shellene gilbert

Amount Raised

$0

Fundraiser Title

Cheri Fouche

Amount Raised

$0

Donor Comments

Lilly's Mission to Find a Cure for VWM

Lilly's Mission to Find a Cure for VWM

DONATION: $123.54

Pennies for VWM #givingtuesday 2 years ago

Anonymous

ANONYMOUS

DONATION: $25

2 years ago