EVENT DATE: May 20, 2017
Michelle Douris and I are raising money that will go to the Eastern Pennsylvania Chapter of the National Hemophilia Foundation to help find a cure for hemophilia. We are doing this for Michelle's son, Gavin, my husband, Mike, and all of the other hemophiliacs out there. In addition to organizing a Beef and Beer in May, we are trying to raise money through CrowdRise that will go directly to the Eastern Pennsylvania Chapter (EPC). Read below to learn a little more about Mike and Gavin! Gavin is 10 years old and is severe factor 8 deficient with a tolerized inhibitor. He gets IV medicines every other day yet still manages to get joint bleeds that cause him to either be in a wheelchair or need crutches multiple times a year. Mike is 38 years old and is moderate factor 9 deficient. He also suffers from Degenerative Disc Disease and Fibromyalgia, both Chronic Pain conditions. Under normal circumstances, Mike would be able to have surgery and take medication to help ease his pain. However, due to his hemophilia, surgery and pain medications are not an option so he lives with pain and discomfort every day. Please help support Gavin, Mike, and all of those people out there who live with hemophilia!