Skip to content
noreenweidener's profile image - click for profile

noreen WEIDENER's Fundraiser:

Fit for FOD

noreen's Photo

BENEFITING: Children's Hospital of Pittsburgh Foundation

EVENT DATE: Jun 20, 2015

noreen WEIDENER

THE STORY:

Hello Family and Friends,

I am participating in the Franklin Lakes/Wyckoff Triathlon again. I am hoping to raise money and awareness for research conducted for children with very rare genetic metabolic disorders. All proceeds will go to Children's Hospital of Pittsburgh Foundation *Fisch Fund* www.givetochildrens.org. Please help this cause which is near and dear to my heart. Thanks to compassionate caring people, doctors and research teams we can help children and families who are affected by these illnesses, to cope and possibly live a better quality of life. We appreciate anything you can give.

Love and gratitude,

Noreen

 

Emma's Story

As you all know my youngest child Emma has a very rare metabolic condition called TFP (trifunctional protein deficiency).  She is not able to metabolize essential fats that maintain brain function, heart function, fasting capabilities and reserve for stress/illness. These individuals often suffer from cardio myopathy, peripheral neuropathy, muscle breakdown and weakness, and other long term ailments that affect their quality of life.  My daughter has had cardio myopathy since 8 months old. She must eat every 4 hours around the clock and tires very quickly, as these children cannot store energy for daily use.  Through all these efforts we can make a difference. Thank you! 

 

 

 

 

 

 

DONATE

To This Fundraiser

$831

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Jennifer Lim

    $25

  • The Rypkema Family

    $50

  • Hana Tsui

    $25

  • Stephanie Peltzer

    $25

  • Kristen Fleissner

    $25

  • Joy Ki

    $25

  • Andrea Collins

    $25

  • Renee Stefanacci

    $25

  • Nicole Seyffer

    $25

  • Wensell Family

    $50

  • The Hanlons

    $25

  • Wicke Family

    $20

  • Giletta Family

    $25

  • The Carollo Family

    $25

  • The Pernetti Family

    $25

  • Olivia Weidener

    $100

  • chung family

    $25

  • Maria Spina

    $25

  • Ann and Paul Shansky

    $36

  • The Borrelli Family

    $25

  • The Boothbys

    $25

  • Joanne Ruemler

    $100

  • Adrianne Klecha

    $25

  • McCarthy Family

    $50

  •  
  •  
  •  
 

42% Raised of $2,000 Goal

Fundraise for this Campaign

The Team: $831 TOTAL RAISED SO FAR

JOIN THE TEAM

Want to help Fundraise or Volunteer for this amazing Fundraiser? Join the Team

Donor Comments

McCarthy Family

McCarthy Family

DONATION: $50

2 years ago

Adrianne Klecha

Adrianne Klecha

DONATION: $25

2 years ago

Joanne Ruemler

Joanne Ruemler

DONATION: $100

2 years ago

The Boothbys

The Boothbys

DONATION: $25

2 years ago

The Borrelli Family

The Borrelli Family

DONATION: $25

2 years ago

Ann and Paul Shansky

Ann and Paul Shansky

DONATION: $36

2 years ago

Maria Spina

Maria Spina

DONATION: $25

2 years ago

chung family

chung family

DONATION: $25

2 years ago

Olivia Weidener

Olivia Weidener

DONATION: $100

Love you Emma. 2 years ago

The Pernetti Family

The Pernetti Family

DONATION: $25

2 years ago