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John Negrete's Fundraiser:

Dougie's Team 2017

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Track my progress via texts!
April 16, 2017

If you're interested in getting updates via text message on my progress through the marathon tomorrow you can text RUNNER and then my bib #29750  See more

BENEFITING: DOUG FLUTIE JR FOUNDATION FOR AUTISM INC

ORGANIZER: DOUG FLUTIE JR FOUNDATION FOR AUTISM INC

EVENT: 2017 Boston Marathon

EVENT DATE: Apr 17, 2017

Mileage Tracker: 143

John Negrete

THE STORY:

Delivering my firstborn on my bed in 2011 was never on my bucket list, but I wouldn't trade it for the world. It was the beginning of many unexpected events that have defined parenthood for me.

But just 3 years ago, Johnny was not a happy boy.  He was frustrated.  So very frustrated and angry.  He couldn’t really talk.  He had about 8 tantrums a day. He growled or yelled at kids who walked by him.  Loud sounds (like toilets flushing or blenders blending) sent him into major meltdowns.  He played alone.  He only played with trains.  Potty training took almost 4 years.

Eventually this led to an Autism Spectrum Disorder (ASD) diagnosis which was a bittersweet moment for my wife and me. We finally had a name for his struggle. But what to do about it? I don't remember any classes in college on how to deal with this.

By God's grace, we were connected with very special people and services to help Johnny become "the best Johnny he could be".

Today, at age six, he is happy.  He regularly says, “Mom, I just love you so much." Or "Dad, you’re the best,” and kisses my cheek.  He tells stories. He plays with a variety of toys.  He has maybe one melt down a day, if that.  Johnny is now potty trained.  Instead of growling, he hugs his friends and plays with them.  He greets people nicely.  In public bathrooms, he plugs his ears.  He lights up when he sees his friends, and other kids are happy to see him!  I almost cried when one of his friends was at our house, tying his shoes, and stopped. He looked at Johnny, and said, “You know what, Johnny?  You’re my best friend.”

We recognize that having a child with special needs is a huge unknown and overwhelming. And not every family can get access to or afford the therapies that will best help their child. 

And so I'm running a marathon. Not just any marathon, the Boston Marathon! It's a reminder of the endurance race that is parenting, especially when special needs are involved. And I chose the Flutie Foundation because of the mission to help families get access to what they otherwise may not be able to.

The goal of the Flutie Foundation is to help families affected by autism live life to the fullest. Through their programs and partnerships, they help people with autism get access to care; lead more active lifestyles; and grow toward adult independence.

This is my dream for Johnny. This is my hope for all families touched by autism and special needs.

I can't thank you enough for your support. It motivates me to continue training and persevering in this fight.

THANK YOU!

$4,380

MONEY RAISED
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  • Todd Heinemann

     

  • Henry Chorro jr

    $100

  • Sheryle Bunyard

    $25

  • Larry and Ginger Takas

    $250

  • Anonymous

    $50

  • Anonymous

     

  • Laurie Grant

    $25

  • Katy Veprauskas

    $100

  • J. Rothaus

    $50

  • Shivaun Van Straatum

    $50

  • Shari Dunn

     

  • Beth Lewis

    $50

  • Norm Meites

    $50

  • Bella, Emmy, Christine and Jae Kim

    $100

  • The Petcove Family

    $100

  • Nancy Miranda

    $100

  • Sherrell Campbell

    $50

  • Anonymous

     

  • Chris Maxwell

    $25

  • Kevin Sanders

    $100

  • Nancy Kokenge

     

  • Rick and Trina Robertson

    $100

  • Justin Leech

     

  • Jeff Cinciarelli

     

  • Scott Gregory

     

  • Jim Berriatua

    $250

  • Ana Karen Conner

    $50

  • Morgan Donnelly

    $25

  • Carla Garrett, Toastmasters

     

  • Dean Paul

    $50

  • Miki

    $100

  • BWL

    $100

  • Nicole Jones-Gyllstrom

    $50

  • cline young

    $100

  • Julie W. Allison, P.A.

    $250

  • Bob Marrone

    $50

  • Scott Fujihara

    $50

  • Doug Gower

    $50

  • The Santhouse family

     

  • Stacy Schwan

    $25

  • Brockelman Family

    $250

  • Delphine Boylr

    $100

  • The Dahl's - ❤️ your sissy

    $50

  • Luz Gannon

    $50

  • Travis Sandberg

    $54.40

  • Scott Schaerer

    $50

  • Gayle Ing

    $300

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175% Raised of $2,500 Goal

The Team: $173,900 TOTAL RAISED SO FAR

Fundraiser Title

Lauren Goloboy

Amount Raised

$24,272

 

101% Raised of $24,000 Goal

Fundraiser Title

Tim- Janelle- Christy -Run With Ell...

Amount Raised

$24,167

 

104% Raised of $23,333 Goal

Fundraiser Title

Lisa Burke

Amount Raised

$13,414

 

107% Raised of $12,500 Goal

Fundraiser Title

Alan Seymour

Amount Raised

$13,028

 

42% Raised of $31,297 Goal

Fundraiser Title

Kendall Boone

Amount Raised

$12,270

Fundraiser Title

Kim Chandler

Amount Raised

$12,097

 

110% Raised of $11,000 Goal

Fundraiser Title

Doug Flutie

Amount Raised

$12,025

 

160% Raised of $7,500 Goal

Fundraiser Title

Ronnie Neff

Amount Raised

$11,699

 

106% Raised of $11,000 Goal

Donor Comments

Gayle Ing

Gayle Ing

DONATION: $300

1 year ago

Scott Schaerer

Scott Schaerer

DONATION: $50

1 year ago

Travis Sandberg

Travis Sandberg

DONATION: $54.40

1 year ago

Luz Gannon

Luz Gannon

DONATION: $50

Praise God for Johnny's improvement! 1 year ago

The Dahl's - ❤️ your sissy

The Dahl's - ❤️ your sissy

DONATION: $50

We support you and all that you do! ð 1 year ago

Delphine Boylr

Delphine Boylr

DONATION: $100

1 year ago

Brockelman Family

Brockelman Family

DONATION: $250

1 year ago

Stacy Schwan

Stacy Schwan

DONATION: $25

Way to go for it! I wish you well!!! 1 year ago

The Santhouse family

The Santhouse family

1 year ago

Doug Gower

Doug Gower

DONATION: $50

1 year ago