Skip to content
ashleysanchez's profile image - click for profile

Ashley and Michael Sanchez's Fundraiser:

Footsteps for Finley 2016

Ashley and Michael's Photo
Ashley and Michael's Photo
Ashley and Michael's Photo
 

thank you!
July 02, 2016

We are a week away from our 3 mile walk and we have met our goal and then some! :) We are so thankful to each and everyone who is on this journey  See more

BENEFITING: CURE CMD

EVENT DATE: Jul 10, 2016

Ashley and Michael Sanchez

THE STORY:

Team Footsteps for Finley benefitting Cure CMD will again be the official charity of the Boilermaker 3 Mile Walk of 2016 on July 9th. We will be raising awareness and funds to help support Cure CMDs mission to find treatments and one day a Cure for Congenital Muscular Dystrophy. More specifically every dollar raised from our little team will go directly to Finley's type of CMD, LAMA2 (Merosin Deficient CMD). Since the beginning of 2013, when Finn was diagnosed, we have tried and quite frankly done well at raising money to help fund current studies and trails. But as you can imagine with such a rare disease money is always needed to keep searching for a cure and helping those children and adults with Congenital Muscular Dystrophy.

Not only do we have family and friends walking but we'll have many runners for the big events, the Boilermaker 5k and 15k on July 10th, 2016. Therefore anyone can realistically participate, whether it be by donating, volunteering, walking or running- we would love for you to join our efforts!! ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Our son Finley was diagnosed with a rare form of congenital muscular dystrophy called CMD LAMA2, or merosin-deficient CMD. There is currently no cure or treatment for this disease. Most of the children with this condition will never walk and are faced with tremendous health challenges, as even a simple cough or runny nose can turn into a serious lung infection requiring hospitalization. The lifespan of children with this disease is greatly shortened due to respiratory distress and most children do not live past young adulthood.

Finley may never run, jump, or dance like we all did as children. These kids struggle to lift their heads, bear weight on their arms and legs and most must navigate their lives from the confines of a wheelchair. All of that said, there is significant hope in the medical community that treatments are within reach.

So on July 9th we will be Finley's legs and he will fill our hearts. As the official charity of the Boilermaker walk of 2016, Footsteps for Finley and Cure CMD will be creating a team as an effort to find a cure for CMD! 100% of the contributions raised for Cure CMD will be used to fund research. Thank you for reading our story and supporting our cause, every thought, prayer, and dollar takes us one step closer to a cure. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

CURE CMD

TO DEVELOP TREATMENTS, AND EVENTUALLY A CURE FOR THE CONGENITAL MUSCULAR DYSTROPHIES.

A group of diseases causing muscle weakness at birth. Several defined genetic mutations cause muscles to break down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older.

Cure CMD is the only non-profit focused solely upon finding treatments, improving the medical management and raising awareness for the CMDs.  Every dollar that is contributed truly makes a difference in funding research and studies, and your contribution will be a big part of our initiatives this year.


The good news: in the last year Cure CMD has fielded an increasing number of calls from the pharmaceutical and venture capital sector who are interested in the CMDs.  Ultra-orphan diseases are coming into the limelight; however it will take all of our individual efforts to push these initiatives forward. 
 

Simply put: we will not stop until we identify interventions and treatments that improve the health and survival of those with CMD.  Thank you for supporting our children.

DONATE

To This Fundraiser

$17,010

MONEY RAISED
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  •  
  • Tyler Waldron and the barerros

    $75

  • Trattoria Ravello

    $1,000

  • Spa Zara

    $50

  • Ciro's Italian Restaurant

    $50

  • Joanne Spencer

    $25

  • Anonymous

     

  • Debbie Finermann, Regency at Monroe

    $25

  • Mr. & Mrs Joel Scharf, Regency at Monroe

    $25

  • Regina and Gerard McGraw

     

  • Joe Peoples

    $100

  • Ginny

    $50

  • Lucia Palazzolo

    $25

  • Regina Braccia

    $50

  • Debbie Zatwarnicki

    $35

  • lebron

    $100

  • Beverly Ciavarro

    $100

  • Maria swing

    $50

  • Nancy

    $50

  • Marilyn and Nick Fiumano

    $50

  • Richard from Cardsmart

    $50

  • The Rankin Family

    $25

  • Vincent, Kasie, Cecilia & Eleba Yao

    $25

  • Debbie LaChappelle

    $50

  • Betty L. McDonald

    $100

  • Sheri, Dave, & Keira Harlan

    $150

  • Aunt Dotsies

    $30

  • Walt & Connie Hiscox

    $50

  • Philip and Sheri from Pet Express

    $250

  • Artie and Joni Dunn

    $25

  • Les and Una Swaby

    $100

  • Charles & Rina Walton

     

  • John and Devin O'Connor

    $100

  • Toy Genius (Sponsor)

    $100

  • Tuscany Italian Specialties (Sponsor)

    $500

  • Got To Go

    $100

  • Evelyn Colon

    $100

  • Anonymous

    $25

  • Jackie, Matt and Vincent Orlando

    $25

  • Janice & Frank Cimino

    $100

  • Madelyn Wisby

    $25

  • Julie JELNIKER

    $25

  • Mary & Tom Durski

    $50

  • Open Road Acura (SPONSOR)

    $500

  • Joan & Al DeMaria

    $50

  • Cousin Marie Absher

    $50

  • Colleen and Wally Binkowski

    $50

  • Nicole Cappiccille and Alex Filiaci

    $100

  • Renee Jarosz

    $25

  • Chris Caruso

    $25

  • Joann and Brad Campbell

    $50

  • Anonymous

     

  • Patty Liggett

    $50

  • We love you Finley!!!

    $25

  • Uncle Bob and Aunt Claudia

    $50

  • Sara Slater

    $60

  • Luciana and Colin

    $250

  • Alex Roberts

    $20

  • Uncle Ed and Aunt Debbie

    $50

  • Anonymous

    $50

  • Ben Boulay

    $25

  • Jessica Beare

    $50

  • Donna Vanderlan

    $25

  • Mario and Susan Lo Sapio

    $50

  • Uncle Chuck's Bakery Fundraiser

    $165

  • Anonymous

    $10

  • Callie & Lincoln Pollard

     

  • Katelynn & DJ Palomo

    $60

  • Olivia Bloomfield

    $100

  • Jackie & Omar Gonzalez

    $50

  • Anonymous

    $50

  • Klara and Lillian

    $25

  • Layne, Elin & Mila

    $50

  • Cathy and Bob Colacurcio

    $50

  • Dj Moyer's Electrical Service

    $100

  • The Poock Family

    $20

  • Colin Riggles

    $55

  • Brioso's Italian Restaurant

    $100

  • Joseph & Marie Gerardo

    $50

  • Sitbon family

    $100

  • Danielle Caiazzo

    $100

  • Cousins Nicole and Alex

    $100

  • Adrienne and Kevin Kellett

    $100

  • DEBRA CAPPICCILLE

    $25

  • Andrew and Megan

    $100

  • Gerda Cella (Artist European Photography)

    $50

  • Cliff & Dolores

    $100

  • Amanda Vanderlan

    $50

  • The Dreyer family

    $50

  • Tamara Jezic

    $25

  • Frederick & Nancy Lupfer

    $25

  • Jackie Jones

    $50

  • Anonymous

    $10

  • Ryann, JP and Rose

    $50

  • Vanity Florist

    $50

  • Uncle Joe

    $25

  • Tuscany Italian Deli

    $100

  • Medical Aesthetics of Monroe

    $100

  • Great Great Aunt Dotsies Beneduce

    $50

  • Paddy & Robby Powell

    $50

  • MARIE AND FRANK CONENNA

    $50

  •  
  •  
  •  
 

5670% Raised of $300 Goal

Fundraise for this Campaign

The Team: $17,010 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Debra Cappiccille

Amount Raised

$9,310

Fundraiser Title

Ashley and Michael Sanchez

Amount Raised

$5,210

 

1737% Raised of $300 Goal

Fundraiser Title

Alicia Sanchez

Amount Raised

$1,945

Fundraiser Title

Pattie & Lyle

Amount Raised

$175

Fundraiser Title

Adrienne Haase

Amount Raised

$100

Fundraiser Title

Paige Brown

Amount Raised

$55

Fundraiser Title

Ella Odum

Amount Raised

$50

Fundraiser Title

Amanda Vanderlan

Amount Raised

$50

Donor Comments

MARIE AND FRANK CONENNA

MARIE AND FRANK CONENNA

DONATION: $50

2 years ago

Paddy & Robby Powell

Paddy & Robby Powell

DONATION: $50

2 years ago

Great Great Aunt Dotsies Beneduce

Great Great Aunt Dotsies Beneduce

DONATION: $50

Use this in the best way for Finley!!!!!!!!!!!!! 2 years ago

Medical Aesthetics of Monroe

Medical Aesthetics of Monroe

DONATION: $100

2 years ago

Tuscany Italian Deli

Tuscany Italian Deli

DONATION: $100

2 years ago

Uncle Joe

Uncle Joe

DONATION: $25

2 years ago

Vanity Florist

Vanity Florist

DONATION: $50

2 years ago

Ryann, JP and Rose

Ryann, JP and Rose

DONATION: $50

2 years ago

Anonymous

ANONYMOUS

DONATION: $10

2 years ago

Jackie Jones

Jackie Jones

DONATION: $50

You go sweet boyð 2 years ago