Ashley and Michael Sanchez wrote -
Our son Finley was diagnosed with a rare form of congenital muscular dystrophy called CMD LAMA2, or merosin-deficient CMD. There is currently no cure or treatment for this disease. Most of the children with this condition will never walk and are faced with tremendous health challenges, as even a simple cough or runny nose can turn into a serious lung infection requiring hospitalization. The lifespan of children with this disease is greatly shortened due to respiratory distress and most children do not live past young adulthood.
Finley may never run, jump, or dance like we all did as children. These kids struggle to lift their heads, bear weight on their arms and legs and most must navigate their lives from the confines of a wheelchair. All of that said, there is significant hope in the medical community that treatments are within reach.
So on July 11th we will be Finley's legs and he will fill our hearts. As the offical charity of the Boilermaker walk of 2015, Footsteps for Finley and Cure CMD will be creating a team as an effort to find a cure for CMD! 100% of the contributions raised for Cure CMD will be used to fund research. A 3 mile walk means anyone can realistically participate if they would like (or volunteer for the event)! Thank you for reading our story and supporting our cause, every thought, prayer, and dollar takes us one step closer to a cure.