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Melanie and Chris Brown's Fundraiser:

BOILERMAKER 3 MILE WALK FOR CURE CMD- FOOTSTEPS FOR FINLEY

Melanie and Chris' Photo
Melanie and Chris' Photo
Melanie and Chris' Photo
Melanie and Chris' Photo
Melanie and Chris' Photo
Melanie and Chris' Photo
Melanie and Chris' Photo
Melanie and Chris' Photo
Melanie and Chris' Photo
Melanie and Chris' Photo
Melanie and Chris' Photo

BENEFITING: CURE CMD

ORGANIZER: Ashley and Michael

EVENT DATE: Jul 11, 2015

Melanie and Chris Brown

THE STORY:

Ashley and Michael Sanchez wrote -

Our son Finley was diagnosed with a rare form of congenital muscular dystrophy called CMD LAMA2, or merosin-deficient CMD. There is currently no cure or treatment for this disease. Most of the children with this condition will never walk and are faced with tremendous health challenges, as even a simple cough or runny nose can turn into a serious lung infection requiring hospitalization. The lifespan of children with this disease is greatly shortened due to respiratory distress and most children do not live past young adulthood.

Finley may never run, jump, or dance like we all did as children. These kids struggle to lift their heads, bear weight on their arms and legs and most must navigate their lives from the confines of a wheelchair. All of that said, there is significant hope in the medical community that treatments are within reach.

So on July 11th we will be Finley's legs and he will fill our hearts. As the offical charity of the Boilermaker walk of 2015, Footsteps for Finley and Cure CMD will be creating a team as an effort to find a cure for CMD! 100% of the contributions raised for Cure CMD will be used to fund research. A 3 mile walk means anyone can realistically participate if they would like (or volunteer for the event)! Thank you for reading our story and supporting our cause, every thought, prayer, and dollar takes us one step closer to a cure.

DONATE

To This Fundraiser

$100

MONEY RAISED
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  • Melanie and Chris Brown

    $25

  • Paige & Cassie Brown

    $25

  • Christie & John MacLagger

    $25

  • Boulder Consultants (sponsor) New Hartford, NY

    $25

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Fundraise for this Campaign

The Team: $20,524 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Ashley and Michael Sanchez

Amount Raised

$7,783

 

778% Raised of $1,000 Goal

Fundraiser Title

Debra Cappiccille

Amount Raised

$6,680

Fundraiser Title

Nicole Cappiccille

Amount Raised

$2,850

Fundraiser Title

Christine A Sanchez

Amount Raised

$875

 

875% Raised of $100 Goal

Fundraiser Title

Erica & Dave Padgett

Amount Raised

$400

Fundraiser Title

Valerie and David Moyer

Amount Raised

$330

Fundraiser Title

Brandon Moyer

Amount Raised

$281

 

112% Raised of $250 Goal

Fundraiser Title

Nicole Moss

Amount Raised

$250

 

100% Raised of $250 Goal

Donor Comments

Boulder Consultants (sponsor) New Hartford, NY

Boulder Consultants (sponsor) New Hartford, NY

DONATION: $25

2 years ago

Christie & John MacLagger

Christie & John MacLagger

DONATION: $25

3 years ago

Paige & Cassie Brown

Paige & Cassie Brown

DONATION: $25

3 years ago

Melanie and Chris Brown

Melanie and Chris Brown

DONATION: $25

3 years ago