BENEFITING: The Marfan Foundation
Since birth, I have lived with a heart condition called Marfan syndrome. It’s a condition that has caused my body to develop in different ways and that has restricted me from many activities, from not being allowed to play sports to not being able to enjoy rollercoasters. I don’t think I fully grasped the extent of my condition until I missed my entire sophomore year of high school while recovering from a ten hour procedure. Marfan syndrome is a disorder of connective tissue, the tissue that strengthens the body's structures. Disorders of connective tissue affect the skeletal system, cardiovascular system, eyes, and skin. I want to donate this to the foundation for other kids to have a better future.