Sheri Lubniewski wrote -Where There’s A Will There’s A Cure was founded by the family and friends of William Richard Whiston. Our organization is a not-for-profit 501(c)(3) charitable organization with the purpose of funding research for treatments of Myotubular Myopathy (MTM).
A treatment for something so rare and devastating was once considered a dream. Today, research suggests that our dream of a cure is possible with your help. A viable treatment can be achieved before this terrible disease takes William and the other afflicted boys from their loving families. Promising work with the MTM1 gene and gene therapy is being actively pursued with the potential to move toward clinical trials. However, as with any rare or orphan disease, funding research is always a challenge.
To learn more about the disease, family experiences and what you can do to help, please visit the link below.