Skip to content

FRAXSOCAL NFXF

FRAXSOCAL NFXF
RSM, CA
CROWDRISING SINCE: May 13, 2015
Stuff About Me:

About Fragile X Association of Southern California:

The Fragile X Association of Southern California was formed in 1996 to promote public awareness of Fragile X Syndrome with special emphasis on educators and health professionals; provide a forum for families of children with Fragile X to meet and share their ideas, concerns, and problems; and support scientific research on Fragile X Syndrome. We are run entirely by volunteer parents of children with Fragile X Syndrome, and are a California non-profit organization.

Though our official mailing address is in Burbank, our membership is actually spread out among Ventura, Los Angeles, Orange, Riverside, and San Bernardino counties. As an association, we participate in resource fairs and other community events throughout Southern California several times per year. We also hold Family Fun Days 4-5 times per year, at different locations within our membership area, where families affected with Fragile X can get together and enjoy activities like bowling, picnics, etc. while getting to know each other. In addition to our Family Fun Days, we periodically host informational seminars for our member families and local professionals, bringing in speakers on important topics such as behavioral interventions for children with Fragile X, legal issues including conservatorship and estate planning, genetics, Fragile X related conditions, drug studies, and more. We also helped to establish, and continue to support, a Fragile X clinic at Miller Children's Hospital in Long Beach.

Our board of directors meets quarterly, in Whittier. We encourage you to attend one of our board meetings; if interested, please email us at fragilexassociation@gmail.com for more details.

 

FRAXSOCAL
NFXF

VOTE

CR Impact Points

Click the VOTE button to give FRAXSOCAL 100 CrowdRise Impact Points (CIPs). Vote for the Volunteers and Fundraisers that are answering the call to service, raising money for charity, and making an impact for their causes. Come back and Vote every months. CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.

CR Impact Points

If you're seeing the grey VOTE button, you should feel great about yourself. It means you already voted for FRAXSOCAL this month. Come back next month and vote again if you still love FRAXSOCAL. Thanks to your vote, FRAXSOCAL earned 100 CrowdRise Impact Points (CIPs). CIPs can earn you the highly coveted, highly respected CrowdRise Royalty Status.

14,190

Total Impact Points

FRAXSOCAL NFXF's Fundraisers

Southern California - LEK 2016

Southern California - LEK 2016

Amount Raised:

$0

 

0% Raised of $1,500 Goal

FRAXSOCAL LEK15

FRAXSOCAL LEK15

Amount Raised:

$3,527

 

235% Raised of $1,500 Goal