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AINSLEYSANGELS OF AMERICA's Fundraiser:

Freedom For Ellen

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THE STORY:

Ainsley's Angels of America is super excited to be able to help Ellen experience inclusive road racing in her own running chair!

Meet Ellen!

A pretty, kind and affectionate tween Ellen has been struggling with debilitating health issues her entire life. At the time of birth, she suffered from a Bilateral Pneumothorax (collection of air between the lung and the chest wall on both sides resulting in the collapse of the lung) and was transported to a NICU in Green Bay, Wisconsin, for seven days. At the age of three, she was diagnosed with Chronic Pseudo Intestinal Obstruction. During the procedure to place her permanent Cecostomy (a tube placed by a surgeon into the intestine from outside of the belly), Ellen's intestine perforated multiple times.
      After 10 long years of medical procedures, surgeries and hospitalizations, Ellen is diagnosed with Hypermobility Ehlers Danlos Syndrome (HEDS) with a vascular cross, Dysautanomia, Sleep Disorder, POTS, Chronic Fatigue Syndrome, Anxiety Disorder, Mitochondrial Disorder and ADHD. She has spent much of her time managing chronic ear infections, unexplained sore throats and fevers, hearing loss, speech and language issues, stomach pain, lethargy, muscle weakness with pain, chronic fatigue, dizziness and most recently, benign lesions.
          In the past several years Ellen's health has declined considerably. She has begun wearing braces on her knees and has to use a wheel chair for extreme weakness.
     Her education has been severely compromised due to the unpredictability of her illness. She has been placed in Special Education with OHI (Other Health Impairment) and has an IEP plan in place. She is a brave and courageous girl. Inspite of all odds she currently attends two ~ half days of school per week which is a great achievement with her health state.
    Ellen loves her siblings and fondly cooks and bakes cake on their birthdays. She loves to read the Warrior series. She is an animal lover and has a great knowledge about dolphins, mermaids etc. She takes keen interest in art projects and beading whenever her health permits. She is an inspiration to her friends and family.

 Ellen loves her siblings and fondly cooks and bakes cake on their birthdays. She loves to read the Warrior series. She is an animal lover and has a great knowledge about dolphins, mermaids etc. She takes keen interest in art projects and beading whenever her health permits. She is an inspiration to her friends and family.

YES, YOU CAN...donate 20 or 50 dollars right now to ensure the thrill of rolling with the wind and crossing a road race finish line! 

Click the pink button in the upper right of this page or e-mail: info@AinsleysAngels.org for a link to make a donation using PayPay and/or for a mailing address should you prefer to donate by check.  If desired, we can ensure all donations appear on this page as off-line donations. 

Another way to help, is to spread the word of our message and efforts: 

1. Visit www.AinsleysAngels.org to purchase the children’s book, Born an Angel, written by Ainsley’s then 11-year old sister and donate it to a local elementary school library! 

2. Follow us on Instagram and Twitter: @ainsleys_angels 

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To This Fundraiser

$25

MONEY RAISED
  • Lorie

     

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3% Raised of $900 Goal

Fundraise for this Campaign

The Team: $25 TOTAL RAISED SO FAR

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Donor Comments

Lorie

Lorie

Here's to hoping you get the chair that is made specifically to your needs! <3 3 years ago