Ainsley's Angels is thrilled to help ensure Kylie can soon roll with the wind in her very own FREEDOM Push Chair. As the father of a very special girl that has races with me nearly 90 times, I know the positive energy surrounding the start line, the togetherness of every member preparing to "roll with the wind", and the love we all have for each other is a therapy like no other.
Meet Kylie: Like most 11 year olds, Kylie is a fun-loving, bright and happy little girl. Unlike most 11 year olds, she has also battled an undiagnosed disease for the past 7 years. Her working diagnosis is a "neuro-degenerative disorder of unknown origins". Starting with her first seizure just before her 4th birthday, her list of symptoms has continued to grow to include scoliosis, constant tremors in her body that also affect her voice, fatigue, and a head tilt to name a few. She also has a gated walk, the result of losing quite a bit of muscle tone in her right side which has caused her right foot to turn almost completely inwards. The worst part about this symptom, especially combined with the chronic fatigue, is that even though Kylie loves running she can't go for too long before she slows to a walk and then has to stop completely. Her mom loves to go for runs and takes Kylie and her sisters as often as possible but Kylie has outgrown the convertible bike/stroller that they have been using the last few years and while she can still fold herself into it it isn't very comfortable for her-her knees are in her face and she weighs enough now that going faster than a walk is impossible. Her mom has done 3 half-marathons in the last year and has 2 already planned for the fall and the most disappointing thing for everyone, especially Kylie, is that she can't "run" with mom since she's outgrown the stroller. This is why it would be truly amazing to have a chariot for Kylie, she would be able to run with her mom and family around town as well as being able to experience running long distances and crossing the finish line with her mom. Kylie has been to the National Institute of Health's undiagnosed diseases program; the video we submitted with her application can be found on my sister's youtube here and her interview with Sanjay Gupta for CNN can be found here.
YES, YOU CAN...donate right now to ensure the thrill of rolling with the wind and crossing a road race finish line! Click the pink button in the upper right of this page or e-mail President@AinsleysAngels.org for a link to make a donation using PayPay and/or for a mailing address should you prefer to donate by check. We will ensure all donations appear on this page as off-line donations.
Another way to help, is to spread the word of our message and efforts:
1. Visit www.AinsleysAngels.org to purchase the children’s book, Born an Angel, written by Ainsley’s then 11-year old sister and donate it to a local elementary school library! Proceeds go to the Ainsley's Angels .
2. Follow us on Instagram and Twitter: @ainsleys_angels
3. Lastly, we invite you to enjoy this USA TODAY Video Story: http://youtu.be/4TI81ZHQKyw