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Rick Pinarija's Fundraiser:

Friedreich's Ataxia Research Alliance – FARA

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BENEFITING: Friedreichs Ataxia Research Alliance Fara


EVENT DATE: Apr 17, 2017

Rick Pinarija


Meredeth Williams wrote -

I am raising money for Friedreich's Ataxia Research Alliance – FARA. Friedreich’s Ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder (usually diagnosed in children ages 5-15). I have personally witnessed the effects of this horrible disease as the son of a dear friend was diagnosed with (FA) at the age of 8. He is 20 years of age now and despite being in a wheelchair full time, he goes to the gym regularly and has signed up for college classes. His effort and results inspire, but none more than his comments during a recent FARA interview. “These circumstances were given to me for a reason. A responsibility bestowed upon me to give my all every day. I am strong because of FA and my faith in God carriers me through each day. I have something that causes physical weakness but it doesn’t make me a weak person. In fact, I am an incredibly strong person, inside and out.” Please help FARA find treatments and a cure.


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  • Rick and Gina



Donor Comments

Rick and Gina

Rick and Gina

We are also very proud of you, and your support of your cause :) 2 years ago