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Diane Sassone's Fundraiser:

Friends of Jordan - Part 3

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BENEFITING: MID-ATLANTIC CONNECTION FOR PKU ALLIED DISORDER INC

EVENT: NYC Half 2014

EVENT DATE: Mar 16, 2014

Diane Sassone

THE STORY:

More funds = More research + More awareness.
I'm trying to do my part in raising awareness and donations for research.
PKU is a genetic disorder in which the body is unable to breakdown the amino acid Phenylalanine. If it is not caught on Newborn Screening, the child will develop permanent intellectual disabilities, seizure disorders and psychological problems. Phenylalanine is found in all food except water, oil and sugar. Even fruit and vegetables contain phe. In short, Jordan is only able to consume 3-4 grams of protein a day. (Approx 225mg/phe per day) He can't eat any animal products. No burgers. No chicken or fish. No beans or nuts. No eggs. Not even "regular" bread or pasta. It's quite the tough diet to live with. People with PKU drink a special formula at a prescribed amount daily to get their nutrients. Not all insurance covers food and formula. At $12 for a pound of pasta, I pray for a treatment before he ever has to carry the burden of paying for his food. And one day, I hope that he can go to a restaurant or party, and have the freedom of choosing his meal from a menu that everyone else is choosing from. Sounds easy enough. But it is all about the research. We can all play a part in the future of PKU. Just a few bucks is all it takes to help.

$1,100

MONEY RAISED
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  • Diane Sassone

     

  • Cheryl Augustyne

    $50

  • Toomas

    $50

  • Janet Capo

    $50

  • Jeannette Yezzi Knowles

    $20

  • Laura Lockwood-Trovato

    $25

  • Italian Scallion

    $50

  • THE MCSWIGGANS

    $25

  • McCray family

    $100

  • Flip

    $300

  • Anonymous

    $25

  • Dawn Carter

    $50

  • Craig Carter

    $100

  • Melissa Lavin

    $25

  • Joan and Bill Dalton

    $50

  • Philip Galiano

    $100

  • Hope Lanzetta Donnellan

    $25

  • Elisa Cassidy

    $30

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37% Raised of $3,000 Goal

Fundraise for this Campaign

The Team: $1,100 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Diane Sassone

Amount Raised

$1,075

 

36% Raised of $3,000 Goal

Fundraiser Title

Hope Lanzetta Donnellan

Amount Raised

$25

Donor Comments

Elisa Cassidy

Elisa Cassidy

DONATION: $30

4 years ago

Hope Lanzetta Donnellan

Hope Lanzetta Donnellan

DONATION: $25

4 years ago

Philip Galiano

Philip Galiano

DONATION: $100

4 years ago

Joan and Bill Dalton

Joan and Bill Dalton

DONATION: $50

4 years ago

Melissa Lavin

Melissa Lavin

DONATION: $25

4 years ago

Craig Carter

Craig Carter

DONATION: $100

4 years ago

Dawn Carter

Dawn Carter

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

DONATION: $25

25 4 years ago

Flip

Flip

DONATION: $300

4 years ago

McCray family

McCray family

DONATION: $100

Love you jay xoxo 4 years ago